• What term do you prefer: NED, remission, cancer free, cured?

    Asked by UpandUp on Friday, October 24, 2014

    What term do you prefer: NED, remission, cancer free, cured?

    I hope I am getting close to seeing the time when I can say I am one of these, but I don't know what I will be. Which do you like or is there a difference?

    11 Answers from the Community

    11 answers
    • myronbob's Avatar
      myronbob

      actually all sound pretty good , good luck .bob

      about 5 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      NED is my preference ... they don't see anything, but there could be cancer lurking... (hope not!)

      about 5 years ago
    • GregP_WN's Avatar
      GregP_WN

      I'm with Bob, as long as I don't have anything, I like it! I have always just said remission because that's what most seem to know what it is.

      about 5 years ago
    • Hoping4ever's Avatar
      Hoping4ever

      NED is my favorite because it sounds promising .

      about 5 years ago
    • Ejourneys' Avatar
      Ejourneys

      NED seems the most accurate to me.

      about 5 years ago
    • lilymadeline's Avatar
      lilymadeline

      I love them all! But NED is the current description used to describe a cancer patient with no evidence of disease.
      Cured? They’re realizing that they can’t guarantee that anymore. Remission? No longer used because it is inaccurate and misleading. Cancer free? Nope, nobody is 100% cancer free, we all have cancers in our bodies we just don’t all have active cancers in our bodies......
      So that is why the medical establishment is currently using the terminology NED to describe a cancer patient whose cancer is not currently found to be active....UGH!
      And next year they will probably be using other words to describe the same thing.
      I hope that you are happy and healthy and NED forever!!!! Good luck and God bless!!!

      about 5 years ago
    • melanomamama's Avatar
      melanomamama

      There's a rock band called NED. It consists of a group of doctors who are gynecological cancer specialists who play to raise awareness of gynecological cancer. I was lucky to hear them when they played in Portland, Oregon. It was quite the dance jam. I am NED from melanoma, and I attended the dance with a dear friend who had ovarian cancer. She limped a bit, but when she danced, the limp disappeared. We had a fun, memorable night. She later succumbed, but she asked her husband to have her cremated wearing her dancing shoes and her red lacy lingerie. She was determined to keep kicking it even after her death.

      Here's a link to an interview with the NED band: http://www.youtube.com/watch?v=kz_1s8LOnaw

      Constance Emerson Crooker

      about 5 years ago
    • Keith59's Avatar
      Keith59

      Any of them.....

      about 5 years ago
    • MMarie's Avatar
      MMarie

      I prefer NED. When people ask, I usually say something like, "At my last oncology appointment, there was no evidence of disease. For that I'm grateful, however, I know what we all have cancer cells and obviously mine know how to get out of control."

      about 5 years ago
    • daca1964's Avatar
      daca1964

      I guess NED would be a good one, but ones with Melanoma there is no Remission they told me, but more years you are out the better. I just past the 5 year mark and a lot time it come back after 5 years, but so far so good. I'll take NED. That's what they say when I go and that is fine with me.

      Deb

      about 5 years ago
    • cam32505's Avatar
      cam32505

      I have 2 primary cancers. For the uterine cancer, they just used the term remission. But, for the thyroid cancer, 1 year after treatment, I was told I was 'cured'. After what I've been through, I'm just happy not to have cancer today.

      about 5 years ago

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