• What to except

    Asked by SandiA on Saturday, October 4, 2014

    What to except

    Hi! I met with my medical oncologist Thursday and he confirmed my cancer had spread to my lungs. Stage IV. I have been given two options. Option 1 is a clinical trial and is a combo of two drugs Yervoy and anti pd 1. Option 2 is high dose interleukin 2. My doctor is preparing me for both. His preference is the trial but of course I have to qualify. Has anyone been on any of these drugs and can give me any advice or idea what to expect. I am pretty scared and would appreciate any help from my whatsnext family. Thanks!

    6 Answers from the Community

    6 answers
    • Dick_K's Avatar
      Dick_K

      I am now five year out from stage IV diagnosis and almost five years out from IL-2; it's brutal. Melanomamama describes interleukin-2 very well. The best I can add to her comments is for you to check on the rates of success, it's quite low. I have not had Yervoy or PD-1 so I can't offer any personal comments, sorry. Treatment decisions are tough, best of luck to you.

      over 6 years ago
    • jzwalker's Avatar
      jzwalker

      Even though I had a severe reaction to Yervoy, I would do it again. My last infusion was January 2012. The lesions in my lungs decreased by about a third. As of my last scan in April they were still stable.

      over 6 years ago
    • SandiA's Avatar
      SandiA

      Thank you all very much. I know I have some rough days ahead but it really helps to hear from those you have been there. It really gives me encouragement! I start the process for both this week just in case the trial falls through. I will keep you posted. I love my whatnext family!

      over 6 years ago

    Help the community by answering this question:

    Create an account to post your answer Already have an account? Sign in!

    By using WhatNext, you agree to our User Agreement, and Privacy Policy


    Read and answer more skin cancer - melanoma questions.  Also, don't forget to check out our Skin Cancer - Melanoma page.