• What to except

    Asked by SandiA on Saturday, October 4, 2014

    What to except

    Hi! I met with my medical oncologist Thursday and he confirmed my cancer had spread to my lungs. Stage IV. I have been given two options. Option 1 is a clinical trial and is a combo of two drugs Yervoy and anti pd 1. Option 2 is high dose interleukin 2. My doctor is preparing me for both. His preference is the trial but of course I have to qualify. Has anyone been on any of these drugs and can give me any advice or idea what to expect. I am pretty scared and would appreciate any help from my whatsnext family. Thanks!

    6 Answers from the Community

    6 answers
    • Dick_K's Avatar

      I am now five year out from stage IV diagnosis and almost five years out from IL-2; it's brutal. Melanomamama describes interleukin-2 very well. The best I can add to her comments is for you to check on the rates of success, it's quite low. I have not had Yervoy or PD-1 so I can't offer any personal comments, sorry. Treatment decisions are tough, best of luck to you.

      over 6 years ago
    • jzwalker's Avatar

      Even though I had a severe reaction to Yervoy, I would do it again. My last infusion was January 2012. The lesions in my lungs decreased by about a third. As of my last scan in April they were still stable.

      over 6 years ago
    • SandiA's Avatar

      Thank you all very much. I know I have some rough days ahead but it really helps to hear from those you have been there. It really gives me encouragement! I start the process for both this week just in case the trial falls through. I will keep you posted. I love my whatnext family!

      over 6 years ago

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