• What to expect when getting taxol/herceptin infusions ?

    Asked by Meeks on Tuesday, November 10, 2020

    What to expect when getting taxol/herceptin infusions ?

    Hello. I am getting my chemo port installed today and will be starting taxol/herceptin in a week or so. Would like to hear from others who have been through it. Especially side effects-which they had, when they started and how they relieved them (if they could). Thank you.

    10 Answers from the Community

    10 answers
    • Abendintheroad's Avatar

      I had a reaction to the Taxol. Two days after my first infusion - on a Tuesday - I started to have trouble breathing. By Friday I went to the emergency room where they took an x-ray of my lungs and found no problems. I had no temp and no other symptoms except that I couldn't take a deep breath. The next Tuesday I got another infusion and by Friday I thought I was going to die. I could barely breathe. Still no temp and no other symptoms but went to the ER where an x-ray showed fluid in one lung but no bacterial infection or other cause. I had researched possible Taxol side effects before I went in and told the ER doctor what I had found. He did some checking and came back and agreed that it was the Taxol causing the problems. Evidently this is not a well known or common side effect but I found out about it on this site. They kept me in the hospital for the night as a precaution and I had to wait a few weeks before starting a new drug. I am fine now and I'm glad that someone else had shared their story.

      21 days ago
    • Ashera's Avatar

      Abendintheroad...I am so sorry for your very scary experience. I had SOB (shortness of breath) the whole time during chemo. It was so bad at times I couldn't even put my clothes on or walk across the room. This was just part of 'it' I thought but...maybe not?

      21 days ago
    • Ydnar2xer's Avatar

      I took Taxol by mouth for 5 years, which was supposed to prevent a recurrence of my b/c. However, when I got another type of b/c nine years later, I took TCH and then another year of Herceptin. I hated the Carboplatin weeks (every 3rd week) bc a few days after the infusion, I felt like I was coming down with the flu--tired, CRANKY, body aches. But the Herceptin for the year was wonderful. No ill effects at all. Good luck.

      2 days ago

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