• What to expect with CC

    Asked by Angejone on Tuesday, March 1, 2016

    What to expect with CC

    Hi mum has bile duct cancer with no option for surgery or chemotherapy we have been told we have 6-9 months that was in December Mum has had a stent fitted and has suffered 3 bouts of sepsis she has been in and out of hospital since diagnosis I feel like there is a clock ticking and I can't stop it. Is there anyone out there with similar experiences of this cancer who can tell us what to expect and give us any advice at all please we are currently really struggling thank you in advance

    5 Answers from the Community

    5 answers
    • TXHills' Avatar
      TXHills

      I'm so sorry you and your family are going through this. People have remarked that being the caregiver is even harder than being the patient and I do believe it. It appears you are working with hospice. They should provide services to the entire family and may be able to offer support in your current struggles.
      If she is able, try to have meaningful conversations with your Mum, reminisce, tell her what you need to say and listen to what she needs to tell you all. Human touch, talking or music, perhaps light massage of her hands or face, these may all be soothing to her. Let her lead in expressing what she wants each day, if she can tell you. The physical part is out of your control and it will unfold however it goes. I hope hospice is doing impeccable symptom management for her so she is as comfortable as possible.
      We are here for you and we wish you peace.

      over 3 years ago
    • geekling's Avatar
      geekling

      Egyptian black seed oil will allow her days with less suffering. Mix with equal parts of honey to mask the taste.

      Im very sorry for your family woes.

      over 3 years ago
    • cam32505's Avatar
      cam32505

      Unfortunately, the 6-9 months wasn't going to be comfortable as the cancer is spreading. Ask for and demand all palliaitive care treatment available to help her out. If you need help, hospice can even get you some help by putting her inpatient for brief periods of time so you can rest.

      over 3 years ago
    • Tabatha23's Avatar
      Tabatha23

      I just lost my momma in July 2015...the hurt still lingers and my visions of her are heartbreaking. I understand your need to want answers and help ..understanding? If your taking her to the doctors and caring for her continuously you are most likely Exhausted. Please, sleep when she sleeps and be awake with her as much as possible... This is one of my regrets to have just been able to see her look at me one more time. Touch her and love her as much as she will let you. If you just need to chat please don't hesitate ... I don't really use my knowledge about this type of Pain..But YOU got my attention and my ❤. Be well friend and may God bless you and yours.

      over 3 years ago
    • Angejone's Avatar
      Angejone

      Thanks guys mum is currently still in hospital and is being treated for fluid on the lungs and has started vomiting quite a bit this disease just keeps bringing different symptoms thank you all for your kind words xxx

      over 3 years ago

    Help the community by answering this question:

    Create an account to post your answer Already have an account? Sign in!

    By using WhatNext, you agree to our User Agreement, and Privacy Policy


    Read and answer more bile duct (cholangiocarcinoma) cancer questions.  Also, don't forget to check out our Bile Duct (Cholangiocarcinoma) Cancer page.