• When did side effects from Arimidex start for you?

    Asked by DebraC on Thursday, January 15, 2015

    When did side effects from Arimidex start for you?

    I've been on Arimidex for 1 month now. Feeling stiff and have insomnia. Will this get worse? How long will it last? Please let me know how you are doing on Arimidex!

    24 Answers from the Community

    24 answers
    • banditwalker's Avatar
      banditwalker

      I was tired and stiff before I started Arimidex but I don't think it has gotten any worse. The fatigue is what's getting me. I have heard some say they were advised to take it at night but, I take mine in the A.M. in case it is going to be a bad day of hot flashes and maybe they won't keep me up at night.

      almost 6 years ago
    • karen1956's Avatar
      karen1956

      The side effects vary from person to person...some people they go away after a few months, others just get used to it and lastly for some they persist. I took gabapentin for joint pain which helped a little....also ibuprofen but that didn't do much. The gabapentin also helped with night sweats......all the best to you

      almost 6 years ago
    • Ejourneys' Avatar
      Ejourneys

      I've been on anastrazole (generic Arimidex) since Dec. 6, 2014. So far I've had only a few very mild hot flashes, similar to what I had experienced when I went through menopause. No side effects otherwise.

      I've exercised through treatment and have resumed strength training and planks (plus am taking calcium) to try to counteract the potential osteoporosis from Arimidex. A recent study found that exercise helps decrease pain from it and other aromatase inhibitors:
      http://www.cancernetwork.com/news/exercise-reduces-ai-induced-joint-pain-breast-cancer-survivors

      almost 6 years ago
    • Mikilog's Avatar
      Mikilog

      Hi,I have been on anastrazole (generic arimidex) since sept. 8th 2013. The 1st couple of months I felt like I was a rusty old antique,especially when I woke in the morning! Every joint in my body ached!!!!!! I was stiff,took a great deal of stretching to start the joints and muscle to move! I then started taking aleve 2x's a day along w/ working out 5 days a week,a must!!!!!(alternate between weights,yoga & Pilates),about 6 weeks I started noticing a vast improvement.
      The sleeping,well ,yeah that too was a issue for about the same time . I got myself into a routine of taking a good book and some melatonin(you have to figure what dose works for you) . Benadryl and going To bed about the same time every night . I can' t say how long that took because sometimes even now I have a hard time sleeping,cannot get my brain to stop thinking!!!!!
      Sorry,don't have a answer for that one ,wish I knew how to calm my mind!
      It does get better.
      Stay positive.

      almost 6 years ago
    • JudyW's Avatar
      JudyW

      I've been on Arimidex for four years, and the joint pain gets worse, then better, and then worse again. I take turmeric and activated Quercetin for the joint problems along with MSM and chondroitin. Usually it all helps, though the locations of the arthritis-like pain are increasing. It started in right knee, then left thumb, now left middle finger, lower spine, right hip. You get the picture. I think the absolute worst thing has been the weight gain. I've gained about 28 pounds and nothing I do will take it off. I figure any of this is better than cancer, so I suck it up and deal with it.....alive.

      almost 6 years ago
    • PaulineJ's Avatar
      PaulineJ

      I can't say like everyone here .I'm on arimidex for 2 years now and have 3 more years to go.Miserable daily is the word for me.I don't know if it's my age and everything else I've been through and have that give me side effects galore.But everybody is different from what I've been reading here for a couple of years.

      almost 6 years ago
    • Jbro's Avatar
      Jbro

      I've been taking anastrozole since July 2013. In the beginning I had night sweats, hot flashes achy, stiff joints, and insomnia. I also developed carpal tunnel syndrome and had successful surgery in July 2014 (I had carpal tunnel surgery on my other hand several years ago so anastrozole might not have been to blame). For the last few months I've had rather severe issues with vaginal dryness/atrophy. I take advil pm and melatonin at night and my sleeping is now ok. Calcium/vitamin D3 supplements and a prolia injection every 6 months help keep up bone strength. I exercise (tennis, cardio and weights) five to six days a week but continue to be very stiff/achy after sitting or lying down. My oncologist said I can use a minimal amount of estrace cream and it seems to help some - over the counter medications were not helpful for me. I don't like adding estrogen to my body while taking a drug to eliminate estrogen but he said very little estrogen is absorbed systemically and when the discomfort becomes a quality of life issue the estrace is ok. I'm supposed to be taking anastrozole for 10 years but I may not last that long. I'll try to go 3 1/2 more years (for a total of 5 years) at least.

      almost 6 years ago
    • MARIEM's Avatar
      MARIEM

      I was taking anastrozole for about 6 months and couldn't move as well as sleep. Fortunately, I changed doctors. She mentioned a few other drugs in the same category but with different side effects. I have been on Aromasin for some time now and I can walk again! You might want to speak with your doctor about other medication options.

      almost 6 years ago
    • leslie48240's Avatar
      leslie48240

      Never had an issue with any kind of joint pain until I started Arimidex. Now knee pain is a life altering fact in my life. Can't say for sure it is from Arimidex...but the pain in my hands and feet was for sure. And the extreme vaginal dryness (to the point I couldn't sit, walk,sleep comfortably...really!) When I cut my pills to 1/2 pill daily...those problems went away. (not doctor approved...but he wants me to take it forever...and I just couldn't face that on a daily basis). I was stage IV her2 estrogen+...now clear for almost 6 years. I'm 69 and in good health otherwise. Had to decide how to live my life comfortably w/o inviting cancer back. This was my compromise. I can't help but wonder if the Arimidex eats away at the cartilage in joints.

      almost 6 years ago
    • lilymadeline's Avatar
      lilymadeline

      I’ve been on it for about 4 years, the SE were severe at first, really bad and then they faded away with a lot of work and exercise, and also with Lexipro. Usually if the SE start slowly you are going to be OK, and usually ( but everyone is different ) they go away in about 6 months. I can’t tell you how important these medications are and much easier than chemotherapy and much less painless than cancer is! So stick with it and hang in there!!! Talk to your oncologist and insist on help!! Which it sounds like you are doing anyway! Good luck and God bless!!!

      almost 6 years ago
    • grammyk's Avatar
      grammyk

      I have been on anastrozole for about 18 months. I do yoga and treadmill. Stiff with joint pain but manageable. I take vitamin D, calcium, turmeric and tart cherry tabs. I had arthritis to begin with, but now I have developed carpal tunnel syndrome in my dominant left hand. Both hands get numb during the night, but left one is worse. I have been wearing a brace during the night which helps. My oncologist is sending me to a hand surgeon consult. I am concerned with the recovery process and that I won't be able to do yoga. How long is the recovery, Jbro? Oh, I am also on vagifem for dryness and atrophy. It is quite expensive but I am remotely worth it!! lol

      almost 6 years ago
    • lilymadeline's Avatar
      lilymadeline

      Also are you taking vitamin D3? That usually helps a lot, I would run it by your oncologist of course first but that is usually fine for us to take. Good luck and God bless!

      almost 6 years ago
    • Jbro's Avatar
      Jbro

      Grammyk, recovery from carpal tunnel release isn't bad at all, especially considering all the other stuff we've been through! The relief from numbness was immediate and the pain was minimal. The incision is only about 3/4 of an inch long. I'm not sure about yoga but I was playing tennis again in about 4 weeks. For me the surgery was definitely worth it. Also, how is your experience with vagifem? It's my understanding that there is less estrogen released with that than with the cream (and I would imagine it's less messy). Good luck with your hands!

      almost 6 years ago
    • grammyk's Avatar
      grammyk

      Thanks, Jbro! I guess I am concerned with yoga because you use your wrists to support your body a lot....downward dog, planks, table, etc. I am encaouraged now from you. As for the vagifem, it definitely has helped. I use it twice a week. As far as I know, I will be on anastrozole for only 5 years per my oncologist. Thanks and God bless you!

      almost 6 years ago
    • mofields' Avatar
      mofields

      I've been anastrozole since June 2014. No real SE's at all. Sometimes hands are a little achy or my knees and ankles are stiff - but I am 55. Drink lots of water to keep hydrated and exercise was what I was told to do. I'm also taking a vitamin D/Calcium pill 2x a day for bone density.

      almost 6 years ago
    • TXHills' Avatar
      TXHills

      I've been on arimidex for over 3 years. Quite a bit of joint and muscle pain at first, then it got better. When it got way worse again, I was diagnosed with hypthyroid and once my levels were normalized, that got much better. As did the fatigue. I've tried taking it in the am and the pm. Take it at supper now. Insomnia for a few nights gets treated with melatonin and an increase in exercise, plus yoga. Guided meditation helps me fall deeply asleep more easily. I also had about 10 UTI's, due to the low estrogen. My doc let me take Vagifem and that has kept them at bay, for the most part. Best to you.

      almost 6 years ago
    • smishik's Avatar
      smishik

      I have been on Anestrozole which is a generic form of Arimidex for 2 1/2 yrs. I don't seem to have many problems. The joint pain I figure is just me getting old. I am 58. It isn't something I can't handle. I just have to do stretches every day which isn't bad. My only concern is my memory. I have an appt. this week with Onc for blood work. Next week when I talk to him I am going to ask him about this issue. No other concerns though after 2 1/2 yrs but everyone is different.

      almost 6 years ago
    • FemaleinMotion's Avatar
      FemaleinMotion

      I've been on Arimidex for almost 2 years. I started having arthritic symptoms soon after. I take a small dose of ibuprofen twice daily and try to move as much as possible. I also have a dryness issue: eyes, nose, mouth, everywhere...the symptoms haven't changed much since the beginning. I'll let you know. Hang in there!

      almost 6 years ago
    • Roadrunner's Avatar
      Roadrunner

      I have been on Arimidex since November 1, 2013 so just over a year. At first I didn't notice any SE and then wammy my joints started hurting and not the same one each day. Now both of my knees hurt so bad and are so week I wear soft braces on them so I can walk up and down the stairs. I take my pill at 10:00 pm because I thought maybe the worst side effects would be during my sleep time. For vaginal dryness I am using a compound (rx) of Vit A and E. Ask your doctor about this as it is something that is new. In fact the pharmacist at my oncology office found the information and shared it with the doctors. It works great. Good luck to all of us that have to take this or a similar drug.......we can do it :)

      almost 6 years ago
    • deewishes4's Avatar
      deewishes4

      I am grateful that this site exists. I started this medication today and I am scared to death. I already have arthritis from my neck to my ankles....will this get worse? Sometimes it is hard for me to walk up the steps to our deck when I walk our dog. Will I still get vaginal dryness although I do not have sex? I am praying for all of us.

      about 4 years ago
    • Mygirls17's Avatar
      Mygirls17

      I just started taking Arimidex three days ago, the side effects I am feeling are awful. My feet and ankles are swollen along with a headache hot flashes. Also flared my asthma up. I will be contacting my oncologist.

      about 2 years ago
    • grammyk's Avatar
      grammyk

      Update: ended up having carpal tunnel release on both hands. Successful with minimal recovery. Last Feb I developed an unprovoked DVT after 4 1/2 years of anastrozole . My oncologist took me off the anastrozole and Premarin cream after testing my blood for a cause. None was found. She doesn’t really think it was
      from the anastrozole but discontinued as a precaution. My pcp put me on Xeralto. (Blood thinner) Hopefully I will be getting off of the Xeralto soon. I asked my oncologist if I could resume the Premarin cream for dryness and she said ok. I worry since I am no longer on the anastrozole to protect me from reoccurrence but I guess quality of life matters.

      about 2 years ago
    • Zam's Avatar
      Zam

      What time of the day is best to take arimidex

      almost 2 years ago
    • PaulineJ's Avatar
      PaulineJ

      I've lasted 2 1/2 and got off of it.

      almost 2 years ago

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