• When did you get used to your port?

    Asked by nobrand on Thursday, June 21, 2012

    When did you get used to your port?

    Don't get me wrong; I think my port has made treatment easier, but I look forward to feeling normal again. When, if ever, did you simply forget about it being there?

    15 Answers from the Community

    15 answers
    • GMP3C's Avatar

      My port was put in this past March. I have not been able to just forget about it. Every time I shower I'm reminded that it's there and I don't like it being there. Also it is located exactly where my backpack strap falls and depending on the pack's weight it is either annoying or painful. So, for me, I may never get used to it. Hope you adjust better than I'm doing.

      over 4 years ago
    • leepenn's Avatar

      Sorry, but that never actually happened for me.... I always knew it was there, and it was on my messenger bag strap side... And the car safety belt hit it just right... The only time I didn't really notice it as when I was biking....

      Had it out at the first possible opportunity.

      It never hurt or anything... It was just a constant annoyance. Worth it? Yes. But I really hope I never need one again!

      over 4 years ago
    • nancyjac's Avatar

      I got use to it pretty much immediately. Maybe it was positioned better or that in the grand scheme of things, my port was the least of things I either needed to remember or was reminded about. Mine was put in about 7 months ago and will be in use for at least 6 more months for herceptin infusions.

      over 4 years ago
    • Charlieb's Avatar

      I think I was fortunate. They did new procedure with my port. Mine is in the left side of my chest, but they tunneled from above my left breast up to the juggler. I have not got to the point of being active yet but I forgot about it being there in a couple of days. When I take a shower I just need to remember to tape the caps.

      over 4 years ago
    • Bashiemn's Avatar

      I got my port half way through my treatments, and i agree that it is well worth it. That said, I am glad you posed the question because I can't wait to get it out. I feel tender in the area still but also as though it is pinching under the skin. It's worse when I sleep, since I'm a side sleeper... doesn't matter which side... it's annoying either way. But its a small price to pay.

      over 4 years ago
    • StunnedMike's Avatar

      It really bothered me for about 1 month when I swam. Turning to breath hurt my juggler entry point.

      over 4 years ago
    • CaptainBob's Avatar

      Had my port installed right after I got started with chemo treatments. I think it would be great if we were all born with one. I got used to it right away but must admit that the seatbelt in the car presses a bit on it to make me take note it is there. The ease that it allows has help considerably with some of the treatments I have had to go through so it is worth the minor discomfort. I guess the one thing that having a port does is remind me that I have cancer and that is something I would sometimes like to forget. As you travel through the process I am certain that you will find other things that will take your attention away from having the port and it will become as natural to you as any other part of your body

      over 4 years ago
    • Blue's Avatar

      I just had my port inserted. Still feeling tenderness and can't quite let go of the thought that it is there. Does the tenderness subside after awhile?

      over 4 years ago
    • markmather's Avatar

      I remember being tender for about a week after my port was put in. I also had trouble sleeping on my right side and with seatbelts. Oh well i figured I was already living dangerously so not wearing a seatbelt wasn't going to do me in for a few months. My port has been out for over a year and I am still working with the scar tissue around the area. It sure did feel good to get that thing out of my system.

      over 4 years ago
    • CherylHutch's Avatar

      Sorry, I must be one of the weird ones. I originally had my port put in March of 2007.... and it was taken out about a year later, after I had finished my treatments. I guess it was out for about 2 years or so and then treatments had to start again... so I had to have another one put in. They put it in roughly the same spot, although it was a newer kind of port so also had the catheter that went up through the neck.

      Both times, the actual healing from the surgery of having it inserted took about a week to 10 days. During that time, it was tender, but no big deal. Once it was healed I don't really think about it. When I'm getting dressed, if I happen to be in front of a mirror, then yes, I can see it, but there's no sensation or anything to remind me it's there.

      Chances are, I'm going to have it for the rest of my life... but I much prefer that and the little poke for inserting the IV into it, than having the techs search for a vein on my hand or arm :::shudder:::

      So, I guess everyone is different and adjusts to things differently. Someone mentioned above that they have other things to worry about than the port, which I happen to agree with. This is a constant battle with the monster and when I hear my CEA is going up, or an extra lump has been found... that freaks me out, more so than anything I have ever thought about the pump. But again, each to their own... we all have things that trigger us off but they aren't all the same things.

      over 4 years ago
    • mgm48's Avatar

      Thanks for asking - I'm about to get one and now I know a few things to ask the surgeon to make it just a little more convenient.

      over 4 years ago
    • GregP_WN's Avatar

      I had two, the first quit working, replaced with another in the other side. After a few weeks I didn't think about it. I kept that thing for about 10 years after treatment stopped. I was told if I had to have another it would go in the groin. I didn't want any part of that, so I just kept telling them I'll just keep it a while longer any time they said I needed it out. During that time, the only time I thought about it was if I would lean up against something, or if I felt of it. I will take another in a heartbeat if ever needed.

      over 4 years ago
    • nobrand's Avatar

      Everyone-- thanks so much for your responses. Now that I've had my port for over a week, it has become a lot easier to think about. It bothered me a lot at first, but I'm finally starting to forget about it a little.

      I know this will just take time for adjustment :)

      over 4 years ago
    • PhillieG's Avatar

      It took a few months but it was one of the smartest moves I made with the whole cancer journey. I don't know how some go without one.

      over 4 years ago
    • lymphalive2day's Avatar

      I had a port in my right shoulder area for 4 years (removed 2004) It was tender the first 6 months, especially side sleeping and car seat belt. Then tissue thickened around it and didn't bother me at all. I loved that I could swim and be active. They were new back then and I kept it 4 years. When it was removed, there was a thick pocket of protective scar tissue around it so it was never tender, but it still worked. I think most people take them out a lot sooner now.

      about 4 years ago

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