• When did you get your port removed?

    Asked by Sofi on Saturday, October 6, 2012

    When did you get your port removed?

    I have finished with R-CHOP and am wondering how long others have waited before having their ports removed. I want it out of me soon.

    8 Answers from the Community

    8 answers
    • GregP_WN's Avatar

      I took the other approach. I was treated and told clean. 6 months or so later It was back. Treated again for about a year. Told again I was clean. I kept my port for about 12 years. They kept telling me I needed it out. I didn't want to let it go, doctors had told me that if I had to have another it would have to go in the groin area, I didn't like the sound of that, so I kept it as long as I could.

      Then, after having it out, about 5 years later, I was diagnosed again. This time I didn't need chemo, so I dodged that bullet. It's the little victories that matter, right?

      almost 6 years ago
    • Anita's Avatar

      I have a petscan coming up on Oct 12 2012, which will make me 14 months cancer free as long as this one is ok, my onc told me I can have my port out after this scan .

      almost 6 years ago
    • po18guy's Avatar

      I have had my port since August 2008. I had an aggressive T-Cell Lymphoma, and the prognosis and survival curve is poor for them. It is only a dream to have it out, as I remain on a (post-clinical trial) study drug for the foreseeable future. However, with over three years in remission, the possibility is drawing nearer. The doctor who removed my Hickman catheter remarked that we should work on getting the port out. I really do not mind the port, as it is my lifeline. But, one day at a time.

      almost 6 years ago
    • SherrySwett's Avatar

      I had my Hickman catheter out fairly soon after I had my stem cell transplant. I had it in for 6 months. It was nice not getting poked. But I participated in a clinical trial for 80 weeks after that which meant 40 IVs. I had to get poked every time and it's hard to get blood from my veins. I had sorta wished I had my port left in until that was over.

      almost 6 years ago
    • nancyjac's Avatar

      I also expect to keep mine for a while. I will be done with my herceptin infusions the end of November, but my cancer has a fairly high rate of recurrence so I will still need fairly frequent blood work.

      almost 6 years ago
    • CakeLady's Avatar

      Thanks for posting the question Sofi, I am with you on getting it out though my Dr. suggested leaving it for a while. I am hoping for a year or less but it looks like from some of the postings it may be longer!

      almost 6 years ago
    • HeidiJo's Avatar

      Hi Sofi, I too wanted my port out soon after I finished chemo, really more for a symbolic gesture that I was completly finished with my treatments. That being said, I also had grown a strange attachment to my port. ( I heard other people say the same thing)
      My doctor wanted to leave it in for a year, but I spoke with my surgeon, he said it would not be a problem putting a new one in IF we had to do so.
      So my oncologist and I compromised, and I had it removed 7 months after my last treatment.
      2 years later; so far so good!

      almost 6 years ago
    • Nancebeth's Avatar

      I was told by my onc to leave it in for a year. It bothers me sometimes so I want it out, but just in case my cancer comes back, I'd rather have the port in instead of using my veins or having it reinserted.

      almost 6 years ago

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