• CAL's Avatar

    When to have the mediport removed

    Asked by CAL on Wednesday, April 24, 2013

    When to have the mediport removed

    I am 4 months out from my last chemo (6 months out from when I had my mediport placed), & done with radiation. When I went for my 3 month post chemo checkup with my oncologist, he suggested keeping my port for a year "just in case." Then I went for my 4 week post radiation checkup & my radiation oncologist was concerned about some collateral circulation &/or dilation of the veins in my upper arm & breast on the side where I have my port which is not the same side as my surgery. He had me have a venous doppler ultrasound to be sure there wasn't a blood clot brewing or having been there for some time & it was clear. Now I am a bit more paranoid about the port. It isn't painful but it is tender to the touch all the time & has been since I had it put it. I am thinking about having it removed soon just because I don't know that I would be able to tell if it was causing a problem. So, my question is what other people's experience has been in terms of when to have their port removed.

    10 Answers from the Community

    10 answers
    • leepenn's Avatar

      for me, i had a love hate relationship with the port, and i wanted it gone asap. i had chemo before surgery, so i requested its removal during my double mastectomy, which the surgeon did without hesitation. i know about the whole "just in case" thing... and i get it. but, i never liked the way the thing felt - always pulling at my neck...always a bit tender. if i ever have to do chemo again, i'd get another port... but hopefully, i'll be able to avoid future chemo!!!! hope times seventeen thousand!!!!

      anyway, just talk to your health care team - if it feels icky like all the time, then it seems to me that they should be willing to remove it... quality of life!

      good luck...

      over 3 years ago
    • GregP_WN's Avatar

      I kept mine for 15 years. Every doctor kept telling me to get it out, I kept saying, no, I'll just keep it, just in case. I had it taken out finally, then was diagnosed again 2 years later for the 3rd time.

      over 3 years ago
    • sandikf's Avatar

      I also had a love hate relationship with my port. It was tender and a little sore all the time but I assumed it ws because I am so thin. I had been getting fluids twice a week but after I was finally able to eat and after my second scan came back clean I had my port removed. Hopefully I'll never need it again but if I do I'll have a new one put in

      over 3 years ago
    • Debbie's Avatar

      For me, the port was a constant reminder so I wanted it OUT! Doc made me wait 21 days after last chemo. Day 22 it was gone.

      over 3 years ago
    • Misty's Avatar

      I'm with leepenn. I couldn't wait to get my port removed. My final Herceptin infusion was March 26, my port was removed April 19, and I get the stitches out in 5 more days. I had all kinds of problems related to my port during chemo, including a blood clot in my jugular vein. I was put on Warfarin to slowly treat the clot and dissolve it, and to help prevent others from forming. That required weekly blood tests to monitor my INR. All of my blood draws had to be done in the lab from my arm because of the difficulty they had drawing blood from my port.

      My onc team was 100% behind my decision. I stated that I didn't want the INR draws, and if I needed a port in the future, hopefully there would be a different type that would work better for me.

      Even though I still have stitches, I am so much more comfortable, especially when I'm laying down. I haven't regretted my decision at all. And with the port removed, I don't have to go back every 3 weeks to get it flushed.

      Good luck to you!

      over 3 years ago
    • karen1956's Avatar

      i had my port removed 3 weeks post chemo...it is what my onc recommended...I was happy to be done with it.....

      over 3 years ago
    • Blue's Avatar

      Peripdically, I get what they call a port flush to make sure,it is open and functioning properly.

      over 3 years ago
    • tmclean67's Avatar

      I had my port removed 3 months after last chemo, now 1 year later they realized the spot on my liver was malignant, it's removed but now I'm trying to decide to do chemo again or not. I hated having it, it was uncomfortable. If I have to do it again I may keep it for a couple kof years.

      over 3 years ago
    • sewfun928's Avatar

      I finished chemo in June 2012, and I still have my port. I was so dissappointed when my doc said it had to stay in. When I saw him last month he said maybe in the fall. I have not had any problems with it during or after chemo. I have come to peace with it and figure my doc knows best. But it does make me feel better when I read on this site that others have kept their port in.

      over 3 years ago
    • Giraffe's Avatar

      I had my port removed 1 month after my last chemo. I guess if they can take it, if needed they can put it in again.

      over 3 years ago

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