• when treatments are over

    Asked by jojosmom on Sunday, April 7, 2013

    when treatments are over

    Everyone keeps telling me, oh you'll be done with radiation in 3 days then its all over. Well, I'm still having side effects and swelling, pain. I have to go every 3 months for 1 year for checkups so its not really over. Has anyone else been told this?

    8 Answers from the Community

    8 answers
    • Russ' Avatar

      Hi Jojo's mom, It is never over...NEVER! After my treatments of chemo, (24/7 for 5 weeks), and radiation, (5 days a week the same 5 weeks as chemo), I then had cat scans every 3 months for 2 years, and then a cat scan every 6 months for 2 years, and now one a year forever. But still it is never over. There is not a day that goes by that I do not think about my battle with pancreatic cancer, but I will never forget the day I heard the words… “you have pancreatic cancer, and if you make it past one year, you will then have a 4% chance of living another 5 years.” Even though I am in remission I do at times allow myself the time to reflect, and feel the sorrow of that day. This is why it is so important for me to be able to tell my story to others who have cancer. It is great therapy for me and it gives hope to others that this disease can be beat!

      Good luck and may God Bless You,

      over 5 years ago
    • GregP_WN's Avatar

      If you mean having been told "it will all be over with" in terms of the treatments, yes, I and probably everyone else here has been told that and might have even said it a time or two. I believe the meaning is that the treatments will all be over and you can start to recover and get back to normal. At least that's my thinking.
      I have been through the treatment/recovery process 3 times, it takes a while for sure to get close to normal, and some never get all the way back. I am 4 years out from my last round, only radiation and surgery this time, but I am still fighting serious side effects, that will likely last the rest of my life. But, my treatments are over, hopefully.

      I hope you get to the recovery side quickly, let us know if we can help with anything in the process.

      over 5 years ago
    • Clyde's Avatar

      Is anything in life ever truly over? I understand what you are saying in regard to the black and white of the statement, but once you are diagnosed, you live with cancer for the rest of your life in one may or another. Just like if you get married, buy a house, have kids, change jobs......You can never truly wipe the slate clean and return to previous point.

      over 5 years ago
    • barbaraanne's Avatar

      yep, I finished chemo in Feb, just started radiation will be going until May. One of my friends says "it'll all be over soon...Yeah right....some of the side effects from the chemo are just starting now, and I'm only on 2 rad treatments. No one really knows what cancer does to you, when they haven't been thru it....I try to give them info to read, because when u try to tell them they don't really listen. Thank god my family understands me...Be well & know you are not alone..

      over 5 years ago
    • sandikf's Avatar

      Think they mean treatment is over because the rest sure isn't. I too have to go every 3 months for scans for the 1st year or 2 then less frequently. I was told they don't cnsder you out the woods til you are 'clean' for 5 years. It is on my mind -the what if- sometimes. But just have to take it day by day. Some are good some not so good.

      over 5 years ago
    • leepenn's Avatar

      i hear you - and as much as i really really want it to be over. and i mean i REALLY WANT THIS TO BE OVER. it isn't. i don't have treatments - unless i show signs of recurrence or new cancer. i do go to see the cancer folks once every 3-4 months... they ask me questions - feel me up - weigh me (i hate being weighted) - and so on...

      but, that nagging doubt in the back of my mind? it refuses to be silent. something strange will happen - an eye twitch or back pain or even just gas!!!! and that nagging doubt will increase in volume a bit...

      heavy sigh.

      all we can do is live like we are no evidence of disease... if / when we have evidence of disease... then we'll face that because we'll have to. i have decided to improve my diet a bit - kicked dairy to the curb, for example... but otherwise, i've always lived a rather healthful life. i'm an athlete - i'm a long term vegetarian - etc... so, well, that's it.

      looks like you had hormone positive cancer - does that mean you'll be taking some kind of hormone treatment after you are finished with radiation? in my case, i had a triple negative tumor, which means no drug options are available... on the other hand, i don't have to deal with side effects from yet another drug... so, it's sort of a double edged sword...

      well, congrualtions on making it through all of that! just a short bit of time left to go really... in a few weeks, you'll be on the path towards healing... and hopefully able to find peace and calm around all of this...

      best wishes,

      over 5 years ago
    • MarianneT's Avatar

      I even told myself that...I did a chemo countdown. I knew that it REALLY wasn't all over. I am 22 months out of treatment and I feel like I still have some effects from chemo and have to have 1 more reconstructive surgery. So maybe step 1 or step 2 are over; but yes it sometimes seems as if it never ends. I choose to look at it as my life has changed. Maybe not by choice but it has changed. I accept it like the many changes that occur in life.Most days the acceptance comes easy, somedays are hard. I think people tell us things like it's over in 3 days more like pep talks. Not realistic is it?

      over 5 years ago
    • Nomadicme's Avatar

      Life will never be as it once was. This doesn't mean bad, it's a new normal.

      It is wonderful to be done with active treatment, it is a milestone in the journey that is worth getting to. But the relationship with our disease is not over. There will be many side effects that will keep coming out for a while (the gift that keeps on giving), monitoring that treatment worked. There are many of us in that position, so it's good to go to meetings to embrace your new normal, people that are not touched by cancer lead different lives.

      over 5 years ago

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