• Where should I seek second opinion and better treatent when Specialists of this eyecancer are rare?

    Asked by human@unity on Thursday, September 18, 2014

    Where should I seek second opinion and better treatent when Specialists of this eyecancer are rare?

    And what should I do so as to continue keeping a check on my tumor in the eye which should be stable, the hospitals provide the facility of v scan is far?

    6 Answers from the Community

    6 answers
    • SandiA's Avatar
      SandiA

      I am not sure where you live but when they could not find the source of my stage lllc melanoma tumor in my neck they sent me to Dr Eugene Shildkrot he is an ocular oncologist at the university of Virginia hospital. It turned out my eyes were fine but I really liked him and he came highly recommended.

      over 4 years ago
    • lilymadeline's Avatar
      lilymadeline

      Your profile doesn’t say where you are located, but off hand I think that UCLA in Southern California might be able to help you. And also I would just go to the big heavy hitter cancer centers, such as MD Anderson, Sloan Kettering, maybe City of Hope also in Southern California? Rare cancers are difficult because not enough oncologist specialize in them, but the ones that do seem extremely dedicated!
      If I were you, I would also ask for a social worker immediately, they are usually great at doing research for things like this. Good luck and God bless!

      over 4 years ago
    • ShirleyAlarie's Avatar
      ShirleyAlarie

      I use US News Best Hospitals edition ( google it) and you can find the most highly rated hospitals for various diseases. I would start there and contact the "biggies" on the list if they include eye cancer. When I went for a second opinion, they were able to use the test results from my local hospital, so it may be possible for you to get some guidance without travelling. It is definitely worth the phone calls. Best wishes to you.

      over 4 years ago
    • Vickiecs' Avatar
      Vickiecs

      I was diagnosed with ocular melanoma in February. I was referred to Dr. Matthew Wilson in Memphis, TN. I had Bractheraphy and being monitored every four months.

      over 4 years ago
    • Bestmomever's Avatar
      Bestmomever

      My brother had ocular melanoma and he had a great team of doctors at Johns Hopkins Hospital in Baltimore MD. It was a 2 hour trip for him, but worth it.

      over 4 years ago
    • martyjean's Avatar
      martyjean

      I Went to Mass Eye and Ear in Boston,,,Had Dr Gragoudas. He is excellent

      over 3 years ago

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