• Who has cutaneous t-cell lymphoma, mycosis fungoides? Help me discuss. Pls

    Asked by Sterling on Tuesday, April 30, 2019

    Who has cutaneous t-cell lymphoma, mycosis fungoides? Help me discuss. Pls

    2 Answers from the Community

    • po18guy's Avatar
      po18guy

      Have you contacted the Cutaneous Lymphoma Foundation? A great resource for dealing with this rare cancer.

      https://www.clfoundation.org/

      Another resource is the T-Cell Leukemia Lymphoma Foundation.

      http://www.tcllfoundation.org/

      5 months ago
    • po18guy's Avatar
      po18guy

      Where are you located? Anywhere near the US west coast, Alaska or Hawaii? I ask because the T Cell Leukemia Lymphoma foundation is conducting patient education seminars in San Francisco, Anchorage, Honolulu and Seattle, hosted by world renowned T Cell specialist, Dr. Andrei Shustov. They are completely free if you can get there.

      5 months ago

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