• Who has experience with Xeloda? Did it drag you down and cause whole body aches and pains?

    Asked by GregP_WN on Sunday, March 31, 2019

    Who has experience with Xeloda? Did it drag you down and cause whole body aches and pains?

    Our cousin who is fighting Metastatic Breast Cancer is getting beaten down by it to the point of having to stop treatment for a break. Have any of you experienced that? And, if you know, what was your dose rate?

    8 Answers from the Community

    8 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      I don't know anything about Xeloda or breast cancer, but I am really sorry to hear that your cousin is facing this. I hope you'll get some good answers here. In the meantime, your cousin is in my thoughts and prayers.

      6 months ago
    • LibbyB76's Avatar
      LibbyB76

      I am currently on Xeloda. It my fifth treatment and, so far, my favorite. I had issues with it at first. It caused so much pain in my feet that I had trouble walking. My onc lowered my dose and it is keeping me fairly stable for now. My original dose was 1650 2x per day for one week, then one week on and one week off. I am now at 1500 2x per day with one week on and one week off. I would recommend that your cousin speak with their oncologist to see if a lower dose would help. I do deal with the hand foot syndrome, but it no longer hurts me, just makes my skin super dry. I keep lotion with me at all times.

      6 months ago
    • beachbum5817's Avatar
      beachbum5817

      I am so sorry that your cousin has to go through this. I hope her doctors are able to help her find a dose or drug that will not cause her unbearable side-effects.

      6 months ago
    • JaneA's Avatar
      JaneA

      I took Xeloda for six weeks with my radiation. For it, it was much better than the IV 5FU (Xeloda is the oral equivalent of 5FU). I took 2500 mg daily - 2 in the morning and 3 at night. I'm sorry that your cousin is having such a hard time - unfortunately, it is the nature of the beast that the treatments are harsher when you have metastatic cancer.

      6 months ago
    • GeeKay's Avatar
      GeeKay

      I am so sorry that your cousin is having this issue. I took Xeloda for 2 rounds- 2 weeks on and one week off and then repeated. The dose was three in the morning and 3 at night. The only side effect I experienced was a darkening of my skin. I preferred it to Folfiri.

      6 months ago
    • TerriL's Avatar
      TerriL

      I am on my fifth round of Xeloda with one more round to go. I have not had the hand/foot trouble that often accompanies it. My main issue has been my stomach, for which I take omeprazole. I have also had some fatigue. I take 1500 am and 1500 pm for two weeks with one week off.

      6 months ago
    • GregP_WN's Avatar
      GregP_WN

      Thank you all for your answers, she is going tomorrow to see her oncologist, hopefully to get the dose readjusted.

      6 months ago
    • Keesee's Avatar
      Keesee

      Yes i had to stop because of quality of life was bad. Real bad. I stop taking it 2 years ago after 3 years of taking it. I still have bone pain 24/7. Not fun.

      6 months ago

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