• Who has gone completely through chemo treatment with NO port? Were there reasons why you never got one?

    Asked by GregP_WN on Monday, November 16, 2015

    Who has gone completely through chemo treatment with NO port? Were there reasons why you never got one?

    Most people rave about the benefits of having a port, while others have their own reasons for not wanting one, or perhaps it was never offered. How about you?

    18 Answers from the Community

    18 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      I went through the first rounds of Carboplatin, Avastin, and Alimta ... and the second round with Avastin only, with IV only. Somehow, not having a port made me think I wasn't as sick (despite being told I only had 4 months to live) ... thinking of it now...maybe the doctor didn't mention a port for me because he didn't think I would live long enough for it to matter. It wasn't until I changed hospitals and doctors and drugs that a port.was suggested. Too bad it wasn't mentioned when I was getting the super harsh chemotherapy drugs. My veins would be much happier now.

      over 4 years ago
    • CASSIEME1's Avatar
      CASSIEME1

      i didn't have a port, my chemo was fro 4 treatments

      over 4 years ago
    • CAS1's Avatar
      CAS1

      Well I didn't ask for one because I felt it was a bad omen for me.
      Do I went through 2 platins..etoposide and then Alimta..my veins are shot but I don't regret the decision. I just have a thing about ports.

      over 4 years ago
    • Carool's Avatar
      Carool

      No port was ever offered for my four chemos. This was 16.5 years ago, so maybe ports weren't so often utilized at that time (I don't remember anyone from my support group ever mentioning it).

      over 4 years ago
    • IronMom45's Avatar
      IronMom45

      My first 6 months I had a picc line in my upper left Arm by my choice. Cause it helped me believe this monster was temporary. Well when it came back like it did I got a port. After having done both port is working better easier.

      over 4 years ago
    • SettledSue's Avatar
      SettledSue

      I didn't have a port for my six rounds of taxol and carboplatin. At one point I asked my oncologist if I needed a port and he said no. My veins seem to have survived pretty well.

      over 4 years ago
    • sewfine's Avatar
      sewfine

      No port for 7 treatments over 5.5 months. Rituxin, cytoxin, steroids, etc, etc, . Wasn't offered one and didn't ask for one. Went fine.

      over 4 years ago
    • Erik1059's Avatar
      Erik1059

      I went through without a port, and with a port. The first chemo was MOPP, lasted 7 months had a port, worked well, but once chemo was done, kept getting clogged so it was removed. The cancer came back 2 years later and I had ABVD chemo without a port. What I ran into without the port, was the burning out of my veins. After 9 months of chemo, all the veins in my arm were red and hard as a rock. My veins returned to normal about 6 months later. I would recommend a port to anyone going through chemo!

      over 4 years ago
    • cjs7159's Avatar
      cjs7159

      My first time with chemo in 2008 I did not have a port. My chemo was only 3 days/week 1 week/month. This time I have a PICC line partly because I was in the hospital twice with septicemia & being neutropenic, I had to have long-term antibiotics at home. I wanted a Mediport but because my platelets were too low, it was contraindicated. Because my counts were so low, I also had to get blood work & transfusions 3 times/week & my veins were giving out. I definitely agree that having a more permanent access is the way to go.

      over 4 years ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      I was not offered a port and, at that time, I didn't know enough to ask about it. I did have a Taxol leak my 2nd to last treatment. Nasty looking chemical burn and almost 2 years later, my skin is still slightly discolored.

      over 4 years ago
    • myronbob's Avatar
      myronbob

      I RECOMMEND PORT TO ANYONE DRS. SAY IT FEASIBLE . MYRONBOB .

      over 4 years ago
    • cam32505's Avatar
      cam32505

      I was just told I was scheduled to get a port, with no information about what it is. I only knew because my mother had one. I was only scheduled for 6 treatments, so I thought it was unnecessary. I think they had such a hard time finding a vein for my surgery, they just thought they needed it. As it turned out, I needed blood work, transfusions, I.V. fluids, so I got my money's worth out of my port. I kept it for a year after treatment.

      over 4 years ago
    • jhale17's Avatar
      jhale17

      I did not have a port for six CHOP and four years later for six RICE treatments. The CHOP treatments were not a problem. The RICE with three days stays in the hospital was a problem. My veins kept giving out on my arms and had to be relocated from the back of my hands to my elbow.

      Next came two EPOCH+R with five days stays in the hospital. This is when I got my port. Next came six Treanda+R. The port worked well for these.

      All of my four DLBL NHL episodes were two or four years apart. I am 3.5 years into my last remission and I am keeping my port that I have had for nine years. Scar tissue has built up were they stick the Huber needle and I when I get the port flushed I tell the technician to just aim for the bull's-eye and it will be fine.

      After about seven years of having my port I could not get a blood return during my monthly port flushes. For other reasons my PCP put me on reduced Aspirin every three days. As a result my port flushes started giving a blood return. With no blood return is not an issues as the port still works for infusion. But with no blood return from the port it was necessary to draw blood from my arm for blood tests.

      I will keep my port as long as it keeps working.

      over 4 years ago
    • bzzzzzz's Avatar
      bzzzzzz

      I had no port in 2012 for 4 dose dense rounds of Taxotere Cytoxin. Took a toll on my veins at the end due to severe sensitivity to Taxotere. I'm still glad I had no port.

      over 4 years ago
    • Kris103's Avatar
      Kris103

      I have difficulty imagining chemo without a port. After I was diagnosed, I was scheduled for a port, pretty much as if it was just routine. The thing came in pretty handy for blood work, contrast dye for CT scans, IV antibiotics when I had neutropenic fever, as well as neoadjuvant and adjuvant chemo. I wouldn't have minded keeping it longer term if it weren't for the monthly flushes.

      over 4 years ago
    • Stillblessed's Avatar
      Stillblessed

      I have CLL. I went through 3 months of chemo, 2 days per month. This was 3 years ago. I received two IV drugs the first day for 8 hours and only one of the drugs the second day for 5 hrs. My doctor mentioned a port but she said if I could tolerate it by IV we wouldn't do the port. We never discussed it in detail, we just didn't do it.

      over 4 years ago
    • Lillyzz's Avatar
      Lillyzz

      I still don't have a port. I went through 6 rounds of cysplatin and Alimta. I now am on my 25 treatment of Alimta every 4 weeks. So far, so good. I would be open to it in the future if my treatment changes.

      over 4 years ago
    • calfhugger's Avatar
      calfhugger

      I made a poor decision, my onc had told me I didn't need a port, but with a busy doctor's office, there was no discussion of this and i didn't know enough to ask more. All my friends had breast cancer with more frequent cycles, so I elected to get a port for 6 cycles! I was on Enoxaparin (generic lovenex) for a blood clot after surgery, and I immediately got a huge hematoma on the site (about 7 times normal size), the bruise covered my entire right side. After 6 wks of intense pain, it had finally shrunk to a hardened black clot and I could have it removed. Onc said was a huge danger of infection and couldn't have been used anyway. All this time, I was having chemo in my veins, no problem with a wonderful, careful nurse who I make sure to have every time. I so regret my decision, in this case, the port was a bad idea! However if I was off the lovenex shots, and had frequent infusions, I can see the advantage of a port.

      over 4 years ago

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