• Who is on immunotherapy? Can we have sort of a roll call for everyone that is on any type of it?

    Asked by Boogerman on Wednesday, August 28, 2019

    Who is on immunotherapy? Can we have sort of a roll call for everyone that is on any type of it?

    I know I had lots of questions about it when it was suggested by my doctor, and I came here looking for more information. @LiveWithCancer has helped a lot I read her posts about being on Opdivo. If we have a list of everyone that's on it we can write it down and have a reference to look at and ask questions. Thanks to anyone that will participate in this little roll call.

    8 Answers from the Community

    8 answers
    • KathyMarie's Avatar

      I was diagnosed with Stage 3A nsclc. After talking to my doctor and surgeon we decided I was a good fit for a clinical trial using atezolizumab( Tecentriq). After 2 initial treatments, I had a lobectomy. The pathology report showed cancer was gone from lymph nodes and almost gone from the tumor. Even though I had expected to have to have chemo my doctors both felt I didn’t need it. Because I responded so well, the trial allowed me to continue treatments every 3 weeks for one year. The year will be up in November. So far all scans have been clear and the only side effect has been mild fatigue. I’m glad I decided to go this route and hope it continues to work.
      It will be interesting to see how other people have done on immunotherapy.

      over 1 year ago
    • carm's Avatar

      Tecentriq... The rising star of Immunotherapies and often on the lips of immuno-oncologists.

      over 1 year ago
    • Nana52's Avatar

      Diagnosed with Stage IV NSCLC. After 10 months of chemo, I started immunotherapy, Opdivo, in May 2017. I'm still on treatment with Opdivo once a month. From 7 tumors in my lung, I now have only one. Opdivo also eradicated the tumor in my right hip. I have one tumor on my adrenal gland and one in my thyroid.

      over 1 year ago
    • Dianem's Avatar

      I have stage 4 metastatic lung cancer. I am on opdivo for 3 years. I had been on keytruda for 2 years prior to that. My tumors have shrunk. They are now stable. I have minimal side effects. The major side effect is neuropathy and rheumatoid arthritis mainly in mr hands which we try to manage with medication. Hope this helps. Keep strong and God bless.

      over 1 year ago
    • DanielD's Avatar

      Stage 3a nsc lung cancer. No surgery. 7 weeks chemo/radiation. Lymph nodes -- cancer showed non-detectable, original nodule about original size.
      Durvalumab (Imfinzi) -- immunotherapy drug -- every 2 wks for one year, began April 2019.
      Side effects: shortness of breath, fatigue
      Six month CT scan late next month --- we'll see!

      over 1 year ago
    • 2943's Avatar

      Reoccurance stage 3 nsclc, Keytruda x2 in clinical trial. Tumor went from 1.8 to .6 in 6 weeks. Surgery cancelled. It was gone when doing radiation staging. I call it my magic dust. Three more Imfinzi infusions (every 2weeks for a year). Have had side effects (itching, headaches, extreme fatigue, increased neuropathy, very dry skin) but are tolerable when compared to chemo.

      over 1 year ago
    • LiveWithCancer's Avatar

      Thanks for saying I've helped you! I'm so glad!

      So, you already know that I was on Opdivo from July 2013 until May 2019. Right now, I'm on "watch and see" status because I started developing a rash in May that was likely a result of the nivolumab. Plus, after being on it so long, I guess we mutually decided to see what happens if we stop treatment. I had my first 3-month scan a few weeks ago. Still stable (Thank God!!!)

      over 1 year ago
    • wmsavs' Avatar

      My wife was diagnosed with IIIA lung cancer in February, 2017, initially given Alimta and Carboplatin. After about six months, cancer did not seem to be controlled and I communicated with @LiveWithCancer about immunotherapy , in general, and about how Opdivo has help her. We carried elements of that conversation with my wife's oncologist to determine if she could be a candidate for an immunotherapy.

      Fortunately when she was biopsied they tested the specimen against the two forms of immunotherapy-Opdivo and Keytruda and found that Keytruda could potentially be beneficial for us. My wife's oncologist elected to continue the chemotherapies with Keytruda which has done a small amount of shrinking and has stabilized beyond expectations.

      over 1 year ago

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