• Who is on immunotherapy? Can we have sort of a roll call for everyone that is on any type of it?

    Asked by Boogerman on Wednesday, August 28, 2019

    Who is on immunotherapy? Can we have sort of a roll call for everyone that is on any type of it?

    I know I had lots of questions about it when it was suggested by my doctor, and I came here looking for more information. @LiveWithCancer has helped a lot I read her posts about being on Opdivo. If we have a list of everyone that's on it we can write it down and have a reference to look at and ask questions. Thanks to anyone that will participate in this little roll call.

    8 Answers from the Community

    8 answers
    • 2943's Avatar

      Reoccurance stage 3 nsclc, Keytruda x2 in clinical trial. Tumor went from 1.8 to .6 in 6 weeks. Surgery cancelled. It was gone when doing radiation staging. I call it my magic dust. Three more Imfinzi infusions (every 2weeks for a year). Have had side effects (itching, headaches, extreme fatigue, increased neuropathy, very dry skin) but are tolerable when compared to chemo.

      11 months ago
    • LiveWithCancer's Avatar

      Thanks for saying I've helped you! I'm so glad!

      So, you already know that I was on Opdivo from July 2013 until May 2019. Right now, I'm on "watch and see" status because I started developing a rash in May that was likely a result of the nivolumab. Plus, after being on it so long, I guess we mutually decided to see what happens if we stop treatment. I had my first 3-month scan a few weeks ago. Still stable (Thank God!!!)

      11 months ago
    • wmsavs' Avatar

      My wife was diagnosed with IIIA lung cancer in February, 2017, initially given Alimta and Carboplatin. After about six months, cancer did not seem to be controlled and I communicated with @LiveWithCancer about immunotherapy , in general, and about how Opdivo has help her. We carried elements of that conversation with my wife's oncologist to determine if she could be a candidate for an immunotherapy.

      Fortunately when she was biopsied they tested the specimen against the two forms of immunotherapy-Opdivo and Keytruda and found that Keytruda could potentially be beneficial for us. My wife's oncologist elected to continue the chemotherapies with Keytruda which has done a small amount of shrinking and has stabilized beyond expectations.

      11 months ago

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