• Why am I so tired and why wont my doctor help me?

    Asked by Cindygirl on Monday, March 4, 2013

    Why am I so tired and why wont my doctor help me?

    I am so tired!!! I went to the dr yesterday and doc said its probably from my depression. I dont think so. I have a lot of fun sometimes at work and at home but then i just peter out. I get so sleepy and lazy. Ive been in bed all day but im not sad. What should I do?

    15 Answers from the Community

    15 answers
    • carm's Avatar

      Cindygirl, ask your nurse if it is okay for you to take VitB-12 easy melts. You can get them at any vitamin store, Wal-Mart or Amazon. They come in flavors and the wild cherry is great. They are great energy boosters. Best of luck, Carm RN.

      over 5 years ago
    • AlizaMLS's Avatar

      Dear Cindygirl,

      You ask a good question with many different facets. Some of us have depression before we were diagnosed with cancer, some not and many of us became depressed after being diagnosed, which makes great sense. If your doc (I'm assuming oncologist) has looked at your bloodwork and doesn't see anything out of the ordinary, she/he is going to probably put the blame on depression and whether that's correct is difficult to say. It's hard to get over Cancer, i.e., heal from it or live with it as a chronic illness, so I agree with Carm's suggestion re B-12. It's a great energy boost! (I'm also a Lupus patient with a problem absorbing it from food and vitamin pills, so I must inject it...it's ok-I had 8 years of allergy shots when I was a kid) It helps a lot!!

      I also recommend doing things that are not exerting that will distract you from Cancer, like joining a bookgroup. I'm a Librarian (retired) and also a trained Medical Librarian. If there's no local bookgroup, then there's a virtual one you can join called www.goodreads.com. You can track the books you read, write reviews, join small genre bookgroups, make virtual friends, read others' reviews and find new titles to read. It's a start! It also has the great advantage of being free!!

      Sometimes doing things you enjoy that are distracting from your illness, you'll find will allow you to feel a bit more energetic than you normally would. I love baking and one of these days, I want to bake some cookies from one of my grandmother's recipes. I had my mastectomy in December and I cooked dinner with my fiance's assistance the other night-I made everything but the string beans! I was exhausted!! I was upset that I couldn't even make a whole dinner by myself but now I've heard from other mastectomy patients (without Lupus) that it takes about a year to get back to being yourself. Be patient with yourself and do things you like-reading, art, netflix, Rosetta stone (learning another language), etc. If you need other ideas, please let me know-I've helped lots of people with all kinds of research papers, so I'm familiar with doing these kinds of things.

      Feel better and have fun!!


      over 5 years ago
    • Jivan's Avatar

      please try Ayurveda.. It Help so many people...

      over 5 years ago
    • SueRae1's Avatar

      I'm a bit concerned that your doctor dismissed this issue as being a result of depression considering how complicated this issue can be. Chronic fatigue is a side effect of chemo, and especially if you are being treated for Leukemia. I see that you are working, which can be very physically stressful. You may want to figure out better ways to mange your energy. I know that when i first started chemo I burned out a lot by doing way too much some days.

      over 5 years ago
    • ticklingcancer's Avatar

      I agree with SueRae. Are you currently receiving chemo? If so, I would push the issue with your Oncologist. I had serious fatigue issues while on chemo and it was determined that I was severly anemic. I ended up with a blood transfusion which immediately corrected the issue.

      over 5 years ago
    • SpunkyS's Avatar

      I am supporting the answers from SueRae and TC. It took me months to get back to a steady level of energy. Even now I still peter out after a full day. Keep pursuing the cause.

      over 5 years ago
    • Clyde's Avatar

      Depression can take on many faces and not everyone who is depressed appears to be, is obviously sad, has a lot of fun from time to time etc. My suggestion is to see a mental health pro, if only to have someone objective to speak too about this. Your Dr may be seeing something that you aren't.

      over 5 years ago
    • Cindygirl's Avatar

      Thanks you guys:) I am not on chemo or rad. My blood counts aren't perfect but aren't bad either. Yes I work and am a single mom with two teenagers. I don't know. Something just doesn't feel right. I got some B-12 tabs today. I will try that. My oncologist just said see you in 6 months. My PCP said I was depressed. I feel like they don't care. I mean yes it could be worse but couldn't they give me some advise and a little sympathy. An I being a weirdo. I am so confused and frustrated. Ugh!

      over 5 years ago
    • ddkk3's Avatar

      Cindy, I would suggest seeing a different doctor. It seems like you are unhappy with their care and they seem dismissive of you. If you are still looking for answers, don't be afraid to see someone else.

      over 5 years ago
    • nancyjac's Avatar

      It does sound as if what you are seeking is a different kind of doctor as in a psychologist or psychiatrist. Your oncologist and PCP aren't qualified to give you advice or sympathy for depression, anxiety, or something that just doesn't feel right, and confusion and frustration. Those are all signs of depression and/or anxiety disorder.

      over 5 years ago
    • AlizaMLS's Avatar

      Dear Cindygirl,

      I'm replying to your question again because I have some additional thoughts to share with you. First is that you seek a support group for patients with your type of Cancer (my late Dad had CLL as well [he was much older than you when he had it]) so you can feel comfortable airing your cares and concerns with those with the same experiences. I think it's very validating and that you might feel more energetic (i.e., less depressed [even without realizing you are] after doing so - and meet some friends along the way - try the institution where you're being treated or call the ACS to find out about it or the Leukemia Lymphoma Society.

      The other thing is I'm in the process of reading two books which are excellent. They are "Crazy Sexy Cancer Tips" by Kris Carr and "Crazy Sexy Cancer Survivor" (the sequel) by Kris Carr. Carr, a fairly young woman has a relatively rare form of cancer that's Stage IV, slow growing and which she must adjust to living with as a chronic illness. She shows how to do so with grace and fun, and tells you (her audience) how to do it as well, including how to create your own support network if there's no ready made one. As I mentioned, I'm a Librarian, so I often recommend titles to people if I think they'll help. These are great for you because they're uppers not downers re cancer...;)

      I hope my ideas are helpful. If you need more-please don't hesitate to ask. I'm quite used to being asked lots of questions. It came with the territory!...;)

      Warm wishes,

      over 5 years ago
    • Outlier's Avatar

      Have you asked your Dr. to test your Thyroid function?

      See below for why I ask:

      In 1987, I had radiation therapy for Hodgkins Disease. In 1989, I had Chemotherapy for reocurrence of the Hodgkins Disease.

      In 1991 I was diagnosed with CLL. The same day in 1996 my then Oncologist told me I was in remission, he told me my Thyroid was underactive. I was prescribed Thyroid meds and daily energy increased. In 2012, I was diagnosed with Chronic Fatigue Syndrome. This after experiencing daily fatigue which had been increasing over years. As I live with several chronic illnesses, including: Chronic Kidney Disease; Heart Valve Disease; Chronic Asthmatic Bronchitis, I expect I may have daily fatigue the rest of my life.

      over 5 years ago
    • chill0824's Avatar

      Cindygirl, I am in the same boat, the doctors seem to dismiss my concerns, even when I ask about other tests etc... they chalk it up to depression and told me to stay off the computer and quit doing research. I just feel so alone. My family wont talk about it at all and I cant even get anyone on the phone at the local Leukemia society.

      over 4 years ago
    • Garnet48's Avatar

      It is very important to go to a CLL specialist. Low energy is definitely a side effect of CLL, even when the "numbers" wouldn't indicate it. A specialist will take your energy level into consideration along with all other factors when deciding your overall status. Regular oncologists think they can work with our disease, but that is rarely the case. Do yourself a favor and find a specialist. Even if you have to travel some distance, it is worth it! I've had CLL since 2004 & had treatment in 2012. Can't believe the energy I got back! Feel free to ask me more. There are other CLL specific support group sites on the web. Check those out, too. They can be very helpful.

      over 4 years ago
    • Blazin's Avatar

      I agree with g48 liw energy is part if your desease. I was diagnosed with CLL in 2009. Am not diibg chemo as there is none that will help me with the 17p gene. I'm on a 5 day every month steriod treatment to keep it in check till something comes up that may help. I get fatigued a lot but found when I start to feel that way I find something to do that not to stressful on the body but by no means do I lay down or just sit there as I found that if I did it would get worse. A short walk di a little house work ( yea I do that it keeps the wife happy lol) meet a friend for coffee anything to take the mind off the fatigue. I won't take any kind of supplement s unless discussing it with doc ( which in my opinion I would tell the doc his you r feeling and if it don't change you will find another doc you must be happy with your caregiving team ir you will never feel any better) the crash from supplements can turn out alot worse than the episodes of the fatigue you have. Good luck stay strong and keep fighting.

      about 4 years ago

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