• Will it always be like this? I'm on day 8 after my first chemo...yup 2 scary days away from the danger zone.

    Asked by Gretchen on Wednesday, May 1, 2013

    Will it always be like this? I'm on day 8 after my first chemo...yup 2 scary days away from the danger zone.

    Or so they've led me to believe. Is it just me or anyone else feel a bit like a hypochondriac with all the stuff they tell you "might" happen, I think twice to even kissing my children! This is insane! Sure, right after treatment I was weak- even fainted after my nuelasta shot, but today I feel a little better and I feel like its just my MIND that's saying your sick, your fragile, you cant , YOU CAN'T. UGH! Can I get back to life during treatments; is there such a thing?

    8 Answers from the Community

    8 answers
    • little_fut's Avatar

      No it will not be like this forever. I too thought the same way...cleaning the toilet after EVERY USE, washing my hands with hot water and soap followed by sanitizer.....wiping everything down when and if I touched it....trying not to kiss or touch my man....just being really cautious to where i was going nuts....but after thinking about it after the first week I actually stopped being over careful, and tried to be as normal as possible...whatever that is. I was in alot of pain and discomfort so I was not able to do much. I know the instructions we get are good, but I am not going to become a fanatic....besides, i flopped right onto the closed toilet lid in the middle of the night..NOT FUN...LOL! Best of luck to you and just be cautious not fanatical. Stay away from others who have colds.. cuz we are really susceptible to germs. I hope this helps.

      over 3 years ago
    • ticklingcancer's Avatar

      Don't go thinking you're crazy. I was having pretty bad panic attacks when I first started chemo. I spoke with my Oncologist about it after my first week (I was receiving chemo 5 days in a row and then got two weeks off to recover) he told me I was entitled to have a breakdown considering what I was going through. He then wrote me a prescription for Ativan and all was right in the world (except I still had more chemo in my future). You should speak with your Dr about putting you on ativan for a while. It really does help and you don't have to take it everyday. Just take it when your having a rough day. Hope things get better for you.

      over 3 years ago
    • fastdog's Avatar

      Before I started chemo, I had a "chemo lesson" from a nurse - keep your toothbrush away from the rest of the family's, make sure the toilet is completely closed before you flush it, if you puke on the bedclothes, wash them THREE TIMES in hot water and bleach, and on and on till I felt like Typhoid Mary. Well. I got wicked sick during the night after the first chemo and puked all over the bedclothes and all over my poor little dog. I was horrified. The husband kindly put on rubber gloves and washed the sheets 3 times. Next time I saw the oncologist, I told him about this, and he just laughed and said no, you don't have to do all this, and the only thing about puking on the dog is that she will never get cancer. I've learned that sometimes when we are told what "might" happen, it means it "maybe" happened to somebody else, but might not happen to me and I will just take my chances and not drive myself nuts worrying.

      over 3 years ago
    • CAS1's Avatar

      Go to the ACS desk in your cancer center and get the materials on what to expect while going through treatment. Lots of good information from the NCI.
      Pick a wonderful place in your mind..like your best vacation spot. When you take treatment or start to get down about anything..Go there in your mind and stay there fore a while.

      Or go to the Deepak site and purchase the meditation series. Its wonderful. But put yourself in a calm and safe place in your mind when you take the treatment or you get scared. It will help you .
      All the best,

      over 3 years ago
    • Lirasgirl33's Avatar

      Tell yourself "I can!". I'm telling you girl, getting through treatment is just as much mental as it is physical. I once was running out of my room towards the toilet to puke my brains out but as I ran I yelled "No! No! No!" And ran the opposite way....out to the back yard.....took a deep breath, relaxed, pulled myself out of the "feeling sick" mentality. I asked my boyfriend to bring me my iHome with iPod and listened to my Laid Back Mix. I spent the rest of the day ok.

      Do what works for you. Find and do the things that help you fight those side effects. Never stop kissing your babies. Show them you love them in all ways possible. Going through treatment is tough, it does get physically and mentally exhausting at times, I've cried and that's ok, to release that energy out, but you and I are tougher, believe it and beat it by being one step ahead. We're all here for you, pick our brains as much as you want. Hugs.

      Oh, and yes you can live girl! :) Make plans, tell you body, "body. You are going to be good by this day, cause I want to get out of the house, or I want to do this or that" As I've gone through treatments I've noticed certain days...usually the first 5-7 days after chemo are tougher so I try to plan things after that. Don't let this cancer XXX steal your smile, your laughter, your will to live. Scream it loud "Cancer, you will NOT win!" Make every day count, whether you are fighting through side effects or enjoying your family. Let them be your motivation. And most importantly, if you believe in God, let him hive you his strength, let him give you peace of mind and rest. He is always by our side, no matter what, we are never alone. :)

      over 3 years ago
    • Lirasgirl33's Avatar

      "Never stop kissing your babies".....unless they are sick of course. :) Once they are ok, kiss and hug away. :)

      over 3 years ago
    • Mel's Avatar

      Your not crazy!. Yes! get back to whatever you can when you feel you can. :-)

      over 3 years ago
    • Vjp2012's Avatar

      No it won't be. I am real careful the first 48 hours around family, per my oncologist recommendations. To me e real critical part is germs fom my family. We have 11 year old twins and live n a ranch. So, I am always saying, "did youbwash your hands?" Lol...I am told I can get bossy. Nd, I can. But after one 5 day hospitalization from no WBC count and an upper respiratory infection, I am okay with bring called bossy. Stay well my friend! Hugs!

      over 3 years ago

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