• Wondering what other people's experiences (caretaker or living with) with Stage IV colon cancer has been like. My mom has Stage IV and has a clean scan, but she is only 9 months since diagnosis and sugery. She is on a chemo maintenance program.

    Asked by Pangea422 on Thursday, March 22, 2012

    Wondering what other people's experiences (caretaker or living with) with Stage IV colon cancer has been like. My mom has Stage IV and has a clean scan, but she is only 9 months since diagnosis and sugery. She is on a chemo maintenance program.

    My mom has stage IV colon cancer, had a colectomy and has been on oxyliplatinum for four rounds with avastin and oral xeloda. She is still on the Avastin and oral Xeloda as a maintenance program, since her scan came back clean. Her oncologist says that she could be on this maintenance program until the cancer comes back.
    Has anyone out there been on a similar maintenance program for years, with no sign of the cancer coming back? Since she is stage IV, it seems it's a matter of when, not if, but I want to see what other experiences are out there. Thanks.

    1 Answer from the Community

    • nancyjac's Avatar
      nancyjac

      Avastin stops or slows tumor growth in metastatic colorectal cancer by preventing the growth of new blood vessels. It is an adjuvant therapy. Xeloda slows the growth of tumors. Both drugs have only been in use for a relatively short time (since about 2005), so there isn't any really long term use experience with it yet.

      Stage 4 may only mean that her cancer was metastatic, not that it still is. If her scan doesn't show any tumors or cancer cells sufficient to show up on the scans, she may in fact be cancer free at this time I am assuming the scan you are referring to was a whole body scan, and not just of the area that was surgically removed. If that is the case, these drugs should reduce the risk of recurrence. However, her oncologist's comment that you posted makes me thing that is not the case, so you may want to get some clarification on that from her oncologist.

      about 5 years ago

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