• yervoy how quick?

    Asked by sugarbear on Wednesday, May 22, 2013

    yervoy how quick?

    im slated to start yervoy next week and was just wondering howquick we will know whether it worked.i was on zelboraf and we saw results from that in the first wek but i heard this can take months to show a response

    3 Answers from the Community

    • melanomamama's Avatar

      I hope you have as good results with Yervoy (ipilimumab) as I did. The side effects were minimal for me--fatigue and one bad bout of diarrhea. If you get the latter, do not ignore it. I was told to call my doctor to discuss coming in for emergency treatment. Any diarrhea while on Yervoy can be life threatening. Mine wasn't.
      I believe we waited for a month for the first scan. I've had scans every three months since, and my Stage IV cancer has appeared inactive all this year. If, for any reason, you might also need radiation reasonably close in time to the immunotherapy, that can be a good thing. My oncologist has been researching the effects of immunotherapy in conjunction with radiation, and is getting good results that show the treatments boost each others' effectiveness. My oncologist also says there might be a possibility of giving me more Yervoy if my cancer kicks up again. I've been happy with the treatments, and hope you will get great results.
      Constance Emerson Crooker

      over 3 years ago
    • sugarbear's Avatar

      thanks melanomama -YOU ROCK !!!!!!!!!!!! YOURE ALWAYS SO HELPFUL AND JUST A FEW WORDS FROM CALMS ME RIGHT DOWN and makes me worry a little less .so thank you thank you

      over 3 years ago
    • CAS1's Avatar

      I have my fingers crossed for both of you. The drug works on specific mutations in the cancer. And in certain and quite a few people have been cured of even advance stage melanoma. Meaning at 9 and 10 years no more cancer.

      You should have an indication pretty quickly

      If you know your cancer mutations you might consider sharing them on Cancer commons. com This is a site collecting and sharing data with researchers for Lung and Melanoma. It will help our Dr's use data for cures.

      Yervoy is in clinical trials for LC too as is a new PDL-1 that is proving to be even better..

      My best wishes for you because you and all of us help each other with our journeys.

      over 3 years ago

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