• Zometta

    Asked by EMT-sarge on Friday, July 20, 2018


    I recently moved and started treatment with a new oncologist. I was on letrazole, 125 mg Ibrance and an Xgeva injection monthly. The new oncologist took me off all meds, including pain meds to get a baseline of me. She advised instead of Xgeva , monthly I get Zometta, every 3 months via infusion(iv). It has been 5 days and I have had ALL the side effects, am in extreme pain, and can hardly function. Is this normal? Does this happen every time? What is the reason for the change, other than convenience?

    6 Answers from the Community

    6 answers
    • geekling's Avatar

      Call the doctor immediately, please.

      8 months ago
    • biga17133's Avatar

      So sorry for your pain,, I have been taking Zometta also 3 doses so far in my fight to win every 3 months been told it will help my bones from getting weaker were I have 2 fractures in spine already and bone cancer in hip also ,I have notice that ever time I get the dose of Zometta my symptom's are worse which I had treatment yesterday with a new line of defense 3 time with new treatment and this time first with the Zometta and it's RUFF right now a lot worse then with the first line of defense was but you have pain makes me think huh I have everything else you going thru but not so much pain but I'm on pain pills are you taking any pain pills ? And 5 days ago he took infusion makes me think like @geekling call doctor ,its only been 1 day for me hopefully it don't last 5 like your's,, praying for you,, still taking a bath by myself biga17133

      8 months ago
    • geekling's Avatar
    • Yeahyeah's Avatar

      Get a second opinion. Doctors are not always right. See if you can find information on the Internet about this oncologist. Try to find one affiliated with a teaching hospital because they are exposed to current research.

      8 months ago
    • junie1's Avatar

      i'm with everyone else,, Call the doctor!,, even on the weekends,, they have On Call doctors. I was going to Moffitt for all my doctors,, so they had someone there 24/7,, they have a urgent care area, called Direct referral center,, My family and I got to know them pretty well,, ( i'd end up there a lot). but I didn't have to wait till a Monday to call or see the doctor. But no matter what,, Just call your doctor,, plese don't hesitate,, You are important, and your life is also.
      Good Luck,,

      8 months ago
    • ChicagoSandy's Avatar

      I’m not Stage IV (yet, touch wood), but because of being osteopenic and on letrozole my onco insisted on bone drugs; because of GERD oral ones are out. At first Medicare B wouldn’t pay for Prolia (the non-metastatic-patient version of Xgeva) because it was a drug and part D nixed it because of the cost. So it was Zometa for me. Never again—had all the SEs you did, plus it took 5 tries to find a vein. I stood my ground and was able to get Prolia when Medicare reconsidered. Your onc may be worried that the risk of ONJ is much higher with denosumab given so often; or her policy in general favors Zometa. Either way, you two need to talk ASAP so she can give you reasons and you can defend your priorities.

      8 months ago

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