stormyg's Journey with Rare Cancers

Spouse/Partner: Rare Cancers

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: about 9 years ago, Male, Age: 41

  1. 1
    • stormyg
    • Experience with Rare Cancers
    almost 9 years ago
    stormyg's Avatar


    Oh No

    My husband has been newly diagnosed with synovial sarcoma (a sarcoma typically found in joints) in his heart. He had to undergo emergency open heart surgery to remove an orange size tumor from his heart, but unfortunately they were not able to get it all as it goes through the wall of his heart. We have our first oncologist visit tomorrow to find out any and all information we can regarding the plan of attack. But we are not finding any information on it as it is incredibly rare....has anyone else out there heard of or experienced this?