stormyg's Journey with Rare Cancers
Spouse/Partner: Rare Cancers
Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: about 9 years ago, Male, Age: 41
Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: about 9 years ago, Male, Age: 41
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stormyg
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Experience with
Rare Cancers
almost 9 years agoDiagnosed
Oh No
My husband has been newly diagnosed with synovial sarcoma (a sarcoma typically found in joints) in his heart. He had to undergo emergency open heart surgery to remove an orange size tumor from his heart, but unfortunately they were not able to get it all as it goes through the wall of his heart. We have our first oncologist visit tomorrow to find out any and all information we can regarding the plan of attack. But we are not finding any information on it as it is incredibly rare....has anyone else out there heard of or experienced this?