danirn18's Journey with Chordoma, Bone Cancer

Caregiver: Bone Cancer > Chordoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: about 9 years ago, Female, Age: 26

  1. 1
    • danirn18
    • Experience with Chordoma, Bone Cancer
    over 6 years ago
    danirn18's Avatar



    My daughter, Alyson, was diagnosed with Chordoma in June 2011. She has had three brain surgeries and 8 weeks of radiation. She is, at the moment, tumor free. She also has congenital heart disease and has had 5 heart surgeries throughout the years. She is 20 years old. She is currently struggling with finding any positive in her life and I don't know how to help her with this. This is why I am turning to support pages, to seek other's experiences and see if anyone has any advice