Dexter65's Journey with Endometrial (Uterine) Cancer

Patient: Endometrial (Uterine) Cancer

Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: over 5 years ago, Female, Age: 51, Stage 0

  1. 1
    • Dexter65
    • Experience with Endometrial (Uterine)...
    over 5 years ago
    Dexter65's Avatar

    Diagnosed

    Oh No

    It has been just over a week since I was diagnosed. I an overwhelmed at time, because of my lack of knowledge. I am waiting to see a gyn/oncologist, my appt is Thursday 8/2 at 3:00pm and it can not get here quick enough. When my gyn of 30 years told me that I have cancer, it seemed like the world stopped spinning and I couldn't hear a world he was saying. I don't know what stage it is, I do know that it is early. I do have to have my uterus, fallopian tubes, ovaries and the surrounding lynodes removed. Next thursday can not get here fast enough. I will be fine one minute and falling apart the next. I am more worried about my family and what they are thinking and how it is effecting them. Once I meet the specialist and speak to him I believe I will be better, because I will have more information and hopefully know when my surgery will be.

    4 Comments
  2. 2
    • Dexter65
    • Experience with Endometrial (Uterine)...
    over 5 years ago
    Dexter65's Avatar

    why the additional stress

    Oh No

    I have pre-surgery (8/13) and surgery on (8/20) booked at St. Elizabeths (brighton, ma) with Dr. Steller (gyn/oncologist). I received a phone call this morning from my gyn Dr. Parikh stating that Good Samartian Hospital (brockton) stating that the hospital has the robotic machine use for my surgery and is has been in use for 2 weeks. So since Dr. Steller has privlages for Good Samartian they want to see if he will do the surgery in Brockton, but the date and time might change. I want to scream.. The 8/13 and the 8/20 work for me, my husband already has the days off, my family already made arrangements. Also my husband is leaving on 8/27 and will not be back until 9/1. I just not need the additional stress of now waiting all over again. Dr. Parikh said if I don't hear from him by Thursday then nothing will change, now I am waiting yet again ..... I REALLY DON'T WANT THE DATES TO CHANGE.

    2 Comments
  3. 3
    • Dexter65
    • Experience with Endometrial (Uterine)...
    over 5 years ago
    Dexter65's Avatar

    Surgery

    Procedure or Surgery

    The surgery went extremely well, I have had 2 c-sections and a gastric bypass (laproscopic) and found that the robotic Hysterectomy was much less invasive and minimal pain after. I do suggest that you walk, walk, walk ro get the gas to move asap, I did have some bad nausea coming out of surgery , but I did a clinical study for control neusea. So in addition to the normal poking and proding after surgery I also had about 20 additional vials of blood drawn for the study, but I was glad to be able to help and give back to the hospital.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Neutral/NA
    1 Comment
  4. 4
    • Dexter65
    • Experience with Endometrial (Uterine)...
    over 5 years ago
    Dexter65's Avatar

    Nausea after surgery - Anastesia dept.

    Clinical Trial

    I did a clinical trial for Neusea when in recovery after surgery. I never had a problem with nausea, but I dd volunteer for it. Wouldn't you know when getting to recovery after surgery I was very nauseous and ended up particapating in the trial. I had my blood drawn over several hours and an ekg done. I also have to go back monday for a follow up appointment. They must not get many volunteers for this trail because i was thanks several times and one on the anastesialogist told me i was her hero for doing this. I'm glad I could help, although I don't know if I got the medicine they were studing or something else.

    1 Comment
  5. 5
    • Dexter65
    • Experience with Endometrial (Uterine)...
    about 5 years ago
    Dexter65's Avatar

    Cancer was contained, no further treatment needed

    Celebration

    I am sooooo excited. I just got home from my first post op appt. The cancer was contained in the uterus and no additional treatment is needed. My next follow up appointment it in 1 month. Now I can"t wait for my husband and daughter to get back from Disney World so I can really celebrate!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    6 Comments