laurarose's Journey with Breast Cancer
- 1 Oh No Icon Oh No
- 2 Decision Point Icon Decision Point
- 3 Procedure or Surgery Icon Procedure or Surgery
- 4 Procedure or Surgery Icon Procedure or Surgery
- 5 Decision Point Icon Decision Point
- 6 Drug or Chemo Therapy Icon Drug or Chemo Therapy
- 7 Side Effects Icon Side Effects
- 8 Drug or Chemo Therapy Icon Drug or Chemo Therapy
Patient: Breast Cancer
Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 10 years ago, Female, Age: 62, Stage IIB, HER2 Positive: No, ER Positive: Yes, PR Positive: Don't Know
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Experience Icon Descriptions
Procedure: Drag this icon to show a procedure.
Radiation: Drag this icon to show a specific radiation therapy experience.
Drug Therapy: Drag this icon to show a specific drug therapy experience.
Clinical Trial: Drag this icon to show a clinical trial experience.
Side Effect: Drag this icon to show experience with a specific side effect.
Oh No: Drag this icon to show when something bad happened (e.g., cancer’s back, lost job).
Celebration: Drag this icon to show when something good happened (e.g., last treatment, hair is back).
Loss: Drag this icon to show a time of loss (e.g., lost hair, lost loved one).
Decision Point: Drag this icon to show a time when you had to make a tough decision.
Other Care: Draft this icon to show a time when you needed other care (e.g., hospice, psychotherapy).
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Diagnosed
Oh No
Routine mammogram found 4 tumors, one with DCIS and one with invasive breast cancer
what type of surgery to have
Decision Point
First surgeon suggested an aggressive lumpectomy. Second suggested a bilateral mastectomy
Lumpectomy
Procedure or Surgery
I fainted when they injected the dye through my nipple (with what looked like an 8 inch needle!) I developed a postop cellulites at the sentinal node biopsy site
Double Mastectomy
Procedure or Surgery
I had a bilateral mastectomy with DIEP reconstruction. The surgeon and hospital stay were wonderful and I had VNA at home. I had the nipple sparing surgery and one of the nipples was slow to heal, but it did finally heal!! The recovery from DIEP takes awhile but it was the right surgery for me and the outcome looks excellent (also a lovely flat abdomen!!)
What kind of chemo to do
Decision Point
My oncotype was 28, which was on the high end of intermediate recurrence risk. The oncologist recommended 3 months of AC and 3 months of Taxol. Six months just sounded too long to me, so initially I just commited to the 3 months of AC
Chemotherapy
Drug or Chemo Therapy
I had 4 treatments of AC every 3 weeks. They left me feeling weak and tired, but the medications for preventing nausea worked very well
Hot flashes
Side Effects
I've developed very bad hot flashes. I was having over 20/day, so we decided to try some drug therapy to help reduce them before starting Tamoxifen. I already take meds for depression and high blood pressure, so my PCP decided we should try Neurontin. It seems to be helping slightly (hot flashes are now about 15/day) and we've increaseed the dose twice. It seems like a silly side effect to complain about, but I'm concerned that since Tamoxifen can increase hot flashes I couldn't tolerate them being much worse!!
Chemotherapy
Drug or Chemo Therapy
After finishing the AC I decided to try the Taxol. I had weekly influsions for 12 weeks. I kept thinking that if the side effects (peripheral neuropathy) were too much I would quit, but I actually tolerated it very well