1. about 7 years ago
    mlibrarian's Avatar

    Surgery

    Procedure or Surgery

    I had my second back surgery for compression fractures that were most likely caused by the MM. I am a week out and still having majo...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Me2
    • Experience with Multiple Myeloma
    about 7 years ago
    • snehap
    • Experience with Non-Hodgkin Lymphoma (NHL)
    about 7 years ago
    snehap's Avatar

    Need to decide on future treatment plan

    Decision Point

    Relapsed DLBCL after 9 months in remission.Now , Onco. is suggesting aggressive treatment of R-ICE with allogenic stem cell transpla...

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    1 Comment
    • DonnaP
    • Experience with Peripheral T-Cell Lymphoma
    about 7 years ago
    DonnaP's Avatar

    Autologous Stem Cell Transplant

    Decision Point

    My oncologist wants to do one more round of the brentuximab and check results with. PET then start working with a team for a stem ce...

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    2 Comments
  2. over 7 years ago
    azlibrarylady's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I am on a weekly plan. CyBor-D. 3 drugs, 2 oral, one injection every Tuesday. Have lab work on Monday and office visit on Tuesday. 4...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Kath49
    • Experience with Multiple Myeloma
    over 7 years ago
    Kath49's Avatar

    Cancer is back/Recurred

    Oh No

    My latest blood test shows low level para proteins, so my remission after stem cell transplant lasted for 15 months. I started Thali...

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    1 Comment
    • jaduso
    • Experience with Multiple Myeloma
    over 7 years ago
    jaduso's Avatar

    stem cell transplant

    Procedure or Surgery

    After chemo didn't work,the transplant was my only choice.After the cell extraction came the heavy chemo which left me with no energ...

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    1 Comment
    • SherriD
    • Experience with Acute Myelomonocytic L...
    over 7 years ago
    SherriD's Avatar

    Remission

    Celebration

    Bone marrow biopsy done last week, still no signs of acute Leukemia!! Yea still celebrating. Seven months post stem cell transplant.

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    2 Comments
  3. over 7 years ago
    junebug0121's Avatar

    Onc. said CHOP might not work

    Oh No

    Had a meltdown and said I wish I'd never been diagnosed. Dr. said CHOP might not work on me, and that if it didn't I had "big proble...

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    1 Comment
  4. over 7 years ago
    TheSilverOne's Avatar

    Time for an autologous stem cell transplant (my own cells).

    Procedure or Surgery

    This was extremely difficult. Brutal mucisitus, unable to swallow for days, extremely painful, 3 days of hallucinating, and a 5-week...

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    Went as Expected: Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Kath49
    • Experience with Multiple Myeloma
    over 7 years ago
    Kath49's Avatar

    High Dose Chemo for stem cell collection and again for transplant and bone strengthening treatment

    Drug or Chemo Therapy

    After the Stem cell transplant I am in remission and only having bone strenthening treatment every 3 months as my hip break was so m...

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    Easy to Do: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    4 Comments
    • Blazin
    • Experience with Chronic Lymphocytic Leu...
    over 7 years ago
    Blazin's Avatar

    Stem cell transplant or not

    Decision Point

    The survival rate is real low and also the people I have found are not lasting long after this is done so I'm not real keen on this.

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    2 Comments
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