• Lindac5125
    • Experience with Bile Duct (Cholangi...
    about 20 hours ago
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    Internal radiation

    Radiation

    Had Y-90 in December. Had MRI’s in March and June showing tumor is shrinking. Another scheduled in September.

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    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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    • Lindac5125
    • Experience with Bile Duct (Cholangi...
    about 20 hours ago
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    Cancer is back/Recurred

    Oh No

    Routine MRI in September 2019 showed reoccurrence.

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    • Lindac5125
    • Experience with Bile Duct (Cholangi...
    about 20 hours ago
    Lindac5125's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Became sensitive to metal and cold objects. Experienced fatigue.

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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    • Lindac5125
    • Experience with Bile Duct (Cholangi...
    about 20 hours ago
    Lindac5125's Avatar

    Surgery

    Procedure or Surgery

    Resection. Removed lower right portion of my liver.

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Lindac5125
    • Experience with Bile Duct (Cholangi...
    about 20 hours ago
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    Just Diagnosed

    Oh No

    Went to ER because I thought I had pancreatitis caused by a new medication. Diagnosis was a spot on my liver which was malignant.

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    • MamaKat71
    • Experience with Bile Duct (Cholangio...
    3 months ago
    MamaKat71's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    It wasn't as bad as everyone told me and it makes doing my chemotherapy so much easier I wished I would have got my port sooner, I a...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • MamaKat71
    • Experience with Bile Duct (Cholangio...
    3 months ago
    MamaKat71's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    My chemotherapy treatment is with gemcitabine and cisplatin along with dexamethasone I do have really bad hot flashes when I take th...

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Scottsdale
    • Experience with Intrahepatic, Bile ...
    5 months ago
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    Pemigatinib by Incyte. FIGHT202. It's an FGFR2 inhibitor drug.

    Clinical Trial

    This is an FGFR2 inhibitor. If you have bile duct cancer, you should have NGS(next generation sequencing) either through biopsy or ...

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    • warrenmf
    • Experience with Bile Duct (Cholangioc...
    10 months ago
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    Radiation

    After hearing of all the possible side effects it went much better then expected.

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
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    • warrenmf
    • Experience with Bile Duct (Cholangioc...
    10 months ago
    warrenmf's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    It went much better then expected.

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • SaraD
    • Experience with Distal (Extrahepatic), B...
    over 1 year ago
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    Surgery

    Procedure or Surgery

    I had a Whipple procedure. Very difficult to recover from quickly

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Niccook
    • Experience with Bile Duct (Cholangioca...
    over 1 year ago
    Niccook's Avatar

    Work problems

    Oh No

    Boss is encouraging SSDI

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    0 Comments
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