• JP316
    • Experience with Small-Cell Carcinoma, Bl...
    2 months ago
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    Body part/function

    Loss

    Kidney removal 12/2018.

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    • JP316
    • Experience with Small-Cell Carcinoma, Bl...
    2 months ago
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    Surgery

    Procedure or Surgery

    Had kidney removed in December 2018. Spent a week in the hospital and 2 weeks in rehab. Had to have 2 blood transfusions due to exce...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • JP316
    • Experience with Small-Cell Carcinoma, Bl...
    2 months ago
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    BCG

    Drug or Chemo Therapy

    After 6 BCG treatments, scans revealed that patient had bladder cancer with metastasis to the lung. BCG treatment was stopped in Nov...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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    • JP316
    • Experience with Small-Cell Carcinoma, Bl...
    2 months ago
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    Eye Inflammation

    Side Effects

    Patient suffers from inflammation in both eyes.

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    • JP316
    • Experience with Small-Cell Carcinoma, Bl...
    2 months ago
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    Taste change/loss

    Side Effects

    Patient says foods don’t taste good.

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    • JP316
    • Experience with Small-Cell Carcinoma, Bl...
    2 months ago
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    Fatigue (tiredness)

    Side Effects

    Patient takes frequent naps and sleeps about 12 hours per night.

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    • JP316
    • Experience with Small-Cell Carcinoma, Bl...
    2 months ago
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    Other

    Drug or Chemo Therapy

    Treatment has caused overactive thyroid, eye inflammation, back and body pain, and fatigue.

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  1. 5 months ago
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    Pembrolizumab

    Drug or Chemo Therapy

    Fatigue, pain and swelling in feet and legs but managable

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Dppm1124
    • Experience with Transitional Cell (Ur...
    6 months ago
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    Stopping chemo after 5 rounds instead of 6

    Decision Point

    The chemo was impacting my kidney and was no longer worth the risk

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    • Dppm1124
    • Experience with Transitional Cell (Ur...
    6 months ago
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    Chemotherapy

    Drug or Chemo Therapy

    I did 5 rounds of gemczar cisplatin. The cisplatin was split between 2 weeks but is harsh on kidneys. Nothing tasted good so fluids ...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • quimerae
    • Experience with Transitional Cell (Ur...
    6 months ago
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    Immunotherapy -- BCG treatment

    Drug or Chemo Therapy

    This was not too painful, but it was very difficult to hold in pee for some time afterward. I still have to make sure that I am awar...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • quimerae
    • Experience with Transitional Cell (Ur...
    6 months ago
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    Surgery

    Procedure or Surgery

    Did the immunotherapy "BCG" treatments after a resection of a massive tumor ("size of a large orange"). All clear as of 2002!

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
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