• bfmomma
    • Experience with AML Related to Previou...
    about 1 month ago
    bfmomma's Avatar

    Bone Marrow Transplant

    Procedure or Surgery

    I am surprised at how much this procedure (and the 25 day hospitalization) knocked me on my butt! I am normally quite active and sta...

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  1. 2 months ago
    Angelsmom05's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    2nd port placement

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  2. 2 months ago
    Angelsmom05's Avatar

    Cancer is back/Recurred

    Oh No

    Completed 3.5 yrs of chemo, but 4 mos after completed, leukemia came back full force.

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    1 Comment
  3. 2 months ago
    Angelsmom05's Avatar

    Depression/Anxiety

    Side Effects

    Was prescribed Celexa. But I think it was due to being on steroids so young!

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    0 Comments
  4. 2 months ago
    Angelsmom05's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Rough from day 1! Mentally, physically, emotionally! ...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Deco
    • Experience with Chronic Lymphocytic Leuke...
    3 months ago
    Deco's Avatar

    Just Diagnosed

    Oh No

    Being CLL and the generally good prognosis, I'm calm, but now I feel like I am cursed with a cloud over my head for the rest of my l...

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    1 Comment
    • Clarko
    • Experience with Chronic Lymphocytic Leu...
    5 months ago
    Clarko's Avatar

    Decided to leave family alone. Completely alone.

    Decision Point

    No support from family and friends

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    0 Comments
    • Clarko
    • Experience with Chronic Lymphocytic Leu...
    5 months ago
    Clarko's Avatar

    BGB-3111-304

    Clinical Trial

    Started January 2020

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    0 Comments
    • CJLMomma
    • Experience with Acute Lymphocytic Leu...
    6 months ago
    CJLMomma's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    My 14 year old daughter has been cancer free for 8 years now. About every 3 months she has massive nerve pain where her portacath w...

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    0 Comments
    • Resting
    • Experience with Chronic Lymphocytic Le...
    9 months ago
    Resting's Avatar

    Other

    Procedure or Surgery

    I have blood tests and see my oncologist every 3 months to monitor my CLL. Last month the automated blood count found blast cells in...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  5. 9 months ago
    still_fighting's Avatar

    Just Diagnosed

    Oh No

    Last week I was diagnosed with colon cancer after noticing my stools were different. I finally achieve clinical remission and now th...

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    0 Comments
  6. 10 months ago
    still_fighting's Avatar

    Remission

    Celebration

    YAY! My oncologist told me that I was in "clinical remission". I haven't heard that for several years! I am still taking my Venclext...

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    0 Comments
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