• alexislwk
    • Experience with Adrenal Cortical Can...
    about 1 year ago
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    Bowel obstruction

    Side Effects

    had bowel obstruction surgery hair loss twice numbness in fingers and feet extreme fatigue

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    • alexislwk
    • Experience with Adrenal Cortical Can...
    about 1 year ago
    alexislwk's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    17 rounds of chemo

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • alexislwk
    • Experience with Adrenal Cortical Can...
    about 1 year ago
    alexislwk's Avatar

    Surgery

    Procedure or Surgery

    I've had 4 TACE procedures on my liver and just had surgery to cut off the blood supply to my right lobe of the liver in preparation...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • alexislwk
    • Experience with Adrenal Cortical Can...
    about 1 year ago
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    Cancer has spread/Metastasized

    Oh No

    cancer spread to lung and liver

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    0 Comments
    • Ranger1
    • Experience with Adrenal Cortical Cance...
    over 1 year ago
    Ranger1's Avatar

    Surgery

    Procedure or Surgery

    Removed one adrenal gland and kidney,a spleen, and has metastasized to spinal gland and possibly a lung

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    Went as Expected: Strongly Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  1. over 3 years ago
    Lovinglife42's Avatar

    Surgery

    Procedure or Surgery

    I had a 2 lb tumor removed in my left adrenal gland in May of 2016. They thought they had gotten it all. I was cancer free until D...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • fayzie_b
    • Experience with Adrenal Cortical Canc...
    about 5 years ago
    fayzie_b's Avatar

    General Testing

    Procedure or Surgery

    Just had quarterly scans after surgery and radiation in the spring. "Scanxiety" has definitely set in - want results NOW, no intere...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • DESSI
    • Experience with Adrenal Cortical Cancer ...
    over 5 years ago
    DESSI's Avatar

    Nausea/Vomiting

    Side Effects

    stronger chemo last week made him really sick yesterday, all day

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    0 Comments
    • jessst13
    • Experience with Adrenal Cortical Canc...
    over 5 years ago
    jessst13's Avatar

    Michigan is not an option now.

    Decision Point

    My mother's liver is failing. She is declining fast. She is jaundice and cannot stay awake long enough to finish a sentence. Between...

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    1 Comment
    • jessst13
    • Experience with Adrenal Cortical Canc...
    over 5 years ago
    jessst13's Avatar

    Decline in overall well-being

    Side Effects

    Extreme fatigue, severe abdominal pain, high anxiety, dry mouth, nausea, gastric upset, feeling hopeless, depression, anger, confusi...

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    0 Comments
    • jessst13
    • Experience with Adrenal Cortical Canc...
    over 5 years ago
    jessst13's Avatar

    Seeking second opinion

    Other Care

    Traveling to Michigan to the University of Michigan Endocrine Oncology Center to meet with adrenal specialists. Praying for some hop...

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    0 Comments
    • jessst13
    • Experience with Adrenal Cortical Canc...
    over 5 years ago
    jessst13's Avatar

    Cancer has spread/Metastasized

    Oh No

    Liver function is declining, hospitalized for dehydration and jaundice. Cat scans show a significant amount of new tumors.

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    0 Comments
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