• gttngd
    • Experience with Bone Cancer
    28 days ago
    gttngd's Avatar

    Body part/function

    Loss

    Lung damage, skin rash & joint pain from transplant.

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    • gttngd
    • Experience with Bone Cancer
    28 days ago
    gttngd's Avatar

    Birthday

    Celebration

    I have celebrated 3 years of my re-birthday! I am 100% donor cells 3 years later.

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    • gttngd
    • Experience with Bone Cancer
    28 days ago
    gttngd's Avatar

    Hospitalization

    Other Care

    Hospitalized for one month, lodged in an American Cancer Society housing, home care from PT, OT, RN from Lifetime Care. Husband is ...

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    • gttngd
    • Experience with Bone Cancer
    28 days ago
    gttngd's Avatar

    Bone thinning (osteoporosis)

    Side Effects

    There are at least ten side effects on the list of side effects. I experienced side effects of chemotherapy, the stem cell transpla...

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    • gttngd
    • Experience with Bone Cancer
    28 days ago
    gttngd's Avatar

    Just Diagnosed

    Oh No

    Diagnosed with a very rare bone cancer; Myeloproliferative Neoplasm that was Myelofibrosis.

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    • gttngd
    • Experience with Bone Cancer
    28 days ago
    gttngd's Avatar

    Had to decide to have a stem cell transplant or not. Given a 50/50 chance of survival.

    Decision Point

    It was going to be a long arduous recovery and I was warned of it's difficult recovery. It took at least a year to regain my streng...

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    • gttngd
    • Experience with Bone Cancer
    28 days ago
    gttngd's Avatar

    Other

    Procedure or Surgery

    Stem cell transplant left me incapacitated for about 1 year.

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    Went as Expected: Neutral/NA
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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    • gttngd
    • Experience with Bone Cancer
    28 days ago
    gttngd's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Lost 50 lbs & the ability to walk normally due to weakness in 2016. I had to have chemo for a stem cell transplant.

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • KatNT
    • Experience with Bone Cancer
    3 months ago
    KatNT's Avatar

    Bone strengthening drugs

    Drug or Chemo Therapy

    This infusion cause vomiting in me

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
    • KatNT
    • Experience with Bone Cancer
    3 months ago
    KatNT's Avatar

    External radiation

    Radiation

    Side effects come after the aggressive radiation to kill the cancer in my sacrum is finished

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    Painless Experience: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Deb68
    • Experience with Bone Cancer
    about 1 year ago
    Deb68's Avatar

    Metastatic Breast cancer

    Other Care

    Had breast cancer 8 years ago.

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    • Deb68
    • Experience with Bone Cancer
    about 1 year ago
    Deb68's Avatar

    Surgery

    Procedure or Surgery

    2nd Hip replacement in the same hip. They found cancer on the femur.

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    Went as Expected: Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
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