• Pscimeme
    • Experience with Lung Carcinoid Tumor
    over 2 years ago
    • LittleLit
    • Experience with Central, Lung Carcin...
    about 6 years ago
    • Jerelyn
    • Experience with Lung Carcinoid Tumor
    about 7 years ago
    Jerelyn's Avatar

    Wishy-washy no more.

    Decision Point

    My surgeon is probably right. The odds are in his favor to be right. I HOPE he's right. Sometimes I wish I was the kind of person...

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    0 Comments
    • Jerelyn
    • Experience with Lung Carcinoid Tumor
    about 7 years ago
    Jerelyn's Avatar

    Going to New Orleans

    Decision Point

    Two things has bothered me about my care up to this point: one is that after the biopsy, a "regular" PET scan was ordered to see if ...

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    0 Comments
    • Jearl100
    • Experience with Lung Carcinoid Tumor
    about 7 years ago
    Jearl100's Avatar

    Pain

    Side Effects

    Mild to mid level pain in chest an back. Fatigue, weight gain, anxiety. Severe insomnia.

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    0 Comments
    • Jearl100
    • Experience with Lung Carcinoid Tumor
    about 7 years ago
    Jearl100's Avatar

    Misdiagnosed

    Oh No

    Summer 2013, multiple treatments for Bronchitis. Finally, sent to a Pulmonary Specialists- CT/MRI/PET/Core Needle Biopsy. Novem...

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    0 Comments
    • Jerelyn
    • Experience with Lung Carcinoid Tumor
    about 7 years ago
    Jerelyn's Avatar

    Learning all about it -- maybe too much.

    Decision Point

    So I've been studying everything thing I can find, watching lectures from carcinoid conferences, pouring over posts in carcinoid lis...

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    0 Comments
    • Jerelyn
    • Experience with Lung Carcinoid Tumor
    about 7 years ago
    Jerelyn's Avatar

    Diagnosis

    Oh No

    A solitary nodule last fall led to a follow-up X-ray this summer, which led to a CT scan, which led to a biopsy, which led to a diag...

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    3 Comments
    • pottsrnj
    • Experience with Atypical, Lung Carcin...
    over 7 years ago
    pottsrnj's Avatar

    news that tumor had not changed made my husband question more rad. and chemo

    Decision Point

    my husband and I sat down, a number of times, share our feelings, our plan, talk to a priest, and I told him it was HIS choice, I wi...

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    0 Comments
    • pottsrnj
    • Experience with Atypical, Lung Carcin...
    over 7 years ago
    pottsrnj's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    lost over sixty lbs., could not eat and two hospital stays for blood tranfusions, impacted bowel

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    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • pottsrnj
    • Experience with Atypical, Lung Carcin...
    over 7 years ago
    pottsrnj's Avatar

    husband chose to stop al treatments, was told tumor has not changed since chemo

    Oh No

    went thr eight weeks of chemo and rad. was in hospital for related problems and was told the tumor had not shrunk and he would have ...

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    0 Comments
    • WilliamW
    • Experience with Lung Carcinoid Tumor
    over 7 years ago
    WilliamW's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Just completed first of four treatments.

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
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