1. 2 months ago
    mcornwall's Avatar

    Side Effects

    Loss of appetite, loss weight, lost desire to eat, depression, low white blood cell count neuropathy, respiratory infection

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    0 Comments
  2. 2 months ago
    mcornwall's Avatar

    Side Effects

    Broken arms, damage to spine

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    0 Comments
  3. 2 months ago
    Bridgettj's Avatar

    Do I have an auto transplant and have to be sickly for 6 months or longer with hopes of a some what extended life or should I just keep on trying the chemos and living from side effects to side effects?and

    Decision Point

    I'm almost 6 years since diagnosis. I have tried most of all the oral and subcutaneous treatments. Most all have given me neuropa...

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    0 Comments
    • Pscott29
    • Experience with Multiple Myeloma
    3 months ago
    Pscott29's Avatar

    Internal radiation

    Radiation

    No side effec5s

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Pscott29
    • Experience with Multiple Myeloma
    3 months ago
    Pscott29's Avatar

    Drug or Chemo Therapy

    Nothing

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  4. 3 months ago
    Saturnhartwig's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Revlimid, dexamethasone, velcade, acyclovir, vitamin d, baby aspirin, oxycodone. I am on a two week on one off for revlimid. The De...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  5. 3 months ago
    Saturnhartwig's Avatar

    Bladder cancer

    Other Care

    Scraped out a tumor from my bladder. Six gimbemacide catheter treatments. They put this chemo fluid by way of a catheter into your b...

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    0 Comments
  6. 3 months ago
    Saturnhartwig's Avatar

    External radiation

    Radiation

    Nothing to it. It relieved pain in my femur by reducing pressure. The bone would not heal without this easy 10 minute procedure.

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  7. 3 months ago
    Saturnhartwig's Avatar

    Surgery

    Procedure or Surgery

    Femur fracture due to chemical exposure and tumor hollowed out bone. I have a stainless steel rod from my knee to my hip. Plate scr...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  8. 4 months ago
    MiriamMarino's Avatar

    What will I do next?

    Decision Point

    When I began treatment for relapse Myeloma in January 2018, I was told it would run through June 2019, a total of 18 months. Now, ...

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    2 Comments
  9. 4 months ago
    Joycebippus' Avatar

    Other

    Other Care

    Self care

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    0 Comments
  10. 4 months ago
    Allisonsue2's Avatar

    Whether to have one or two stem cell transplants back to back or whether to have stem cell transplant at all

    Decision Point

    Decided on oncologist recommendation to do tandem stem cell transplants. Completed first one 01-05-2018 and second one 03-16-2018.

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    1 Comment
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