• judithj
    • Experience with Non-Hodgkin Lymphoma (...
    2 months ago
    judithj's Avatar

    Procedure or Surgery

    Had surgery for squamous cell cancer inside neck lymph nodes. Tumors had NOT (yay) metastasized. Some stiffness and pain but hoor...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  1. 3 months ago
    Sunshineandu's Avatar

    Pain

    Side Effects

    I had R-CHOP for DLBCL and finished in early jan of 2020. I was NED after 4 treatments but my doctor wanted me to have the full 6....

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    0 Comments
    • Jennififty
    • Experience with Diffuse Large B-Cel...
    5 months ago
    Jennififty's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    I have lost dexterity and strength in my legs and my hands. I am 2 months past chemo (r-epoch) and wondering if/when this side effec...

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    0 Comments
    • Cookie48
    • Experience with Mantle Cell Lymphoma
    5 months ago
    Cookie48's Avatar

    PET every three months

    Other Care

    my remission has been over 3 years with PET scans suggested by MD Anderson every 3 months as became sensitive/allergic to Rituxi...

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    0 Comments
  2. 5 months ago
    Beaujingles' Avatar

    Taking Imbruvica - 3 - 140 mg tabs daily

    Other Care

    Nov 12, 2021 platelet count was 85. Has been holding in this range for the past 4 months. Been on this med for about a year and se...

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    1 Comment
    • vikkic232
    • Experience with Non-Hodgkin Lymphoma...
    6 months ago
    vikkic232's Avatar

    Memory changes

    Side Effects

    After discharge and a positive response to treatment, I have noticed memory probs, word retrieval is odd and frustrating. Attention ...

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    0 Comments
    • vikkic232
    • Experience with Non-Hodgkin Lymphoma...
    6 months ago
    vikkic232's Avatar

    Auto stem cell transplant/ high dose chemo to address aggressive protein

    Clinical Trial

    Before agreeing to the trial, i have to share having bone marrow biopsies freaked me out- the pain was intense for me.I responded ve...

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    0 Comments
    • vikkic232
    • Experience with Non-Hodgkin Lymphoma...
    6 months ago
    vikkic232's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Initial six rounds of chemo was frightening as it was unknown. But it didnt interfere too much in my life- i missed 2-3 days from wo...

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    Easy to Do: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • vikkic232
    • Experience with Non-Hodgkin Lymphoma...
    6 months ago
    vikkic232's Avatar

    Just Diagnosed

    Oh No

    I was informed I had cancer a few days after my mom died. I was in shock and immediately compartmentalized and kept it to myself unt...

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    0 Comments
    • judithj
    • Experience with Non-Hodgkin Lymphoma (...
    9 months ago
    judithj's Avatar

    CAR-T November 2018

    Clinical Trial

    2019 in remission

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    0 Comments
    • Beck42
    • Experience with Primary Central Nervous...
    9 months ago
    Beck42's Avatar

    Fatigue (tiredness)

    Side Effects

    Post chemotherapy, I struggled with fatigue and overall coordination

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    0 Comments
    • AngeleBdrx
    • Experience with Non-Hodgkin Lymphom...
    11 months ago
    AngeleBdrx's Avatar

    Just Diagnosed

    Oh No

    My husband had a cold -- or so he thought. Went to urgent care. Co-worker called me & said he didn't look good. Face coloring very...

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    1 Comment
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