• AngeleBdrx
    • Experience with Non-Hodgkin Lymphom...
    3 months ago
    AngeleBdrx's Avatar

    Just Diagnosed

    Oh No

    My husband had a cold -- or so he thought. Went to urgent care. Co-worker called me & said he didn't look good. Face coloring very...

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    1 Comment
    • Kellraiser
    • Experience with Chronic Lymphocytic...
    5 months ago
    Kellraiser's Avatar

    Relationship issues

    Oh No

    In-laws don't understand that I need to watch out for small illnesses (bugs, colds, flu, etc) and think that I'm over dramatic, that...

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    0 Comments
    • KriddleRN
    • Experience with Non-Hodgkin Lymphoma...
    6 months ago
    KriddleRN's Avatar

    Problem with doctor

    Oh No

    Has determined my positive PET scan to be a false positive without doing a biopsy

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    0 Comments
  1. 6 months ago
    rgrant1741's Avatar

    Calquence

    Other Care

    No side effects

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    0 Comments
  2. 6 months ago
  3. 6 months ago
    Guitarman's Avatar

    Discontinue cancer care visits.

    Decision Point

    After Dx with lewey body dementia, which I feel related to cancer. MD has seen handful of cases like mine, but rare. Experienced deb...

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    0 Comments
    • Menve
    • Experience with Diffuse Large B-Cell Lym...
    9 months ago
    Menve's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    First round of R-CHOP done 1/6/21

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Menve
    • Experience with Diffuse Large B-Cell Lym...
    9 months ago
    Menve's Avatar

    Surgery

    Procedure or Surgery

    Had a mass on spinal cord removed

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • CookiesMom
    • Experience with Lymphoplasmacytic L...
    10 months ago
    CookiesMom's Avatar

    Rituxan - & on Imbruvica Daily 420 mg

    Drug or Chemo Therapy

    Minor issues with both. Luckily, handled well & tolerable.

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
    • CookiesMom
    • Experience with Lymphoplasmacytic L...
    10 months ago
    CookiesMom's Avatar

    Thought it was pneumonia. NOPE.

    Oh No

    Needed 6 blood transfusions as blood levels at 4.1 super low. Secondary cold agglutinins doing the PacMan thing w/my blood cells.

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    0 Comments
    • Homans
    • Experience with B-Cell Lymphoma
    about 1 year ago
    Homans' Avatar

    Remission

    Celebration

    After two failed chemo treatments, received CAR-T immunotherapy June of 2019, all cancer, tumors gone. Had 1 year follow up scan, st...

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    0 Comments
  4. over 1 year ago
    Buddyritz's Avatar

    Loss

    My wife died on Mother's day, May 10th from MDS, an illness called Pre-leukemia. She was cancer free after chemo treatments but the...

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    0 Comments
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