• jjs2019
    • Experience with B-Cell Lymphoma
    2 days ago
    jjs2019's Avatar

    Pain

    Side Effects

    Bone pain

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    0 Comments
    • Gymmom
    • Experience with Diffuse Large B-Cell Ly...
    18 days ago
    Gymmom's Avatar

    Remission

    Celebration

    Clear scan on 7/28/19

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    0 Comments
    • Marycham
    • Experience with Non-Hodgkin Lymphoma ...
    19 days ago
    Marycham's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I went from diagnosis at dr office to hospital to start EPOCH chemo for aggressive B cell nhl. No time to think or prepare. Lot of t...

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    2 Comments
    • Iamwell
    • Experience with Chronic Lymphocytic Le...
    about 1 month ago
    Iamwell's Avatar

    Just Diagnosed

    Oh No

    I’ve tried to forget that I have it. Now I have a lump under my left arm . I’m actually seeing my oncologist today. I can’t forget ...

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    0 Comments
  1. about 1 month ago
    Beaujingles' Avatar

    Rituxan for low platelet count

    Drug or Chemo Therapy

    Stage IV

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  2. about 1 month ago
    Beaujingles' Avatar

    Problem with doctor

    Oh No

    First doctor was temporary, going on to another treatment facility in a few weeks when I was first diagnosed on May 16,2019.

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    0 Comments
    • Reids-Pa
    • Experience with Non-Hodgkin Lymphoma ...
    4 months ago
    Reids-Pa's Avatar

    Cough

    Side Effects

    I have an almost continual violent cough/wheezing. When i "spit up" it's not pghlem but a white, filmy substance. Have real diffic...

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    0 Comments
    • Yogamama1
    • Experience with Non-Hodgkin Lymphoma...
    5 months ago
    Yogamama1's Avatar

    Cancer is shrinking

    Celebration

    Tumor in my chest was grapefruit size on diagnosis. Has shrunk about 50% after round 2 of chemo CT scan

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    0 Comments
    • Yogamama1
    • Experience with Non-Hodgkin Lymphoma...
    5 months ago
    Yogamama1's Avatar

    CAM (Complementary and Alternative Medicine)

    Other Care

    When not in treatment I receive Acupuncture 4x weekly Chiropractor 2x weekly Essential oils

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    0 Comments
    • Yogamama1
    • Experience with Non-Hodgkin Lymphoma...
    5 months ago
    Yogamama1's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Pain from WBC booster, hair loss, incont. at times, brain fog, extreme fatigue and nausea.

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
    • Yogamama1
    • Experience with Non-Hodgkin Lymphoma...
    5 months ago
    Yogamama1's Avatar

    Misdiagnosed

    Oh No

    Had a needle biopsy that showed no cancer but after another CT scan the mass had not shrunk. They did a biopsy (deflated my lung and...

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    1 Comment
    • aracooper
    • Experience with Diffuse Large B-Cell...
    6 months ago
    aracooper's Avatar

    Port removed

    Procedure or Surgery

    I was very nervous about this procedure however it turned out to be very simple. I was taken into outpatient surgery. The worst part...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
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