• Kellraiser
    • Experience with Chronic Lymphocytic...
    4 months ago
    Kellraiser's Avatar

    Relationship issues

    Oh No

    In-laws don't understand that I need to watch out for small illnesses (bugs, colds, flu, etc) and think that I'm over dramatic, that...

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    0 Comments
  1. 4 months ago
    rgrant1741's Avatar

    Calquence

    Other Care

    No side effects

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    0 Comments
  2. 4 months ago
    • Menve
    • Experience with Diffuse Large B-Cell Lym...
    7 months ago
    Menve's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    First round of R-CHOP done 1/6/21

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Menve
    • Experience with Diffuse Large B-Cell Lym...
    7 months ago
    Menve's Avatar

    Surgery

    Procedure or Surgery

    Had a mass on spinal cord removed

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • CookiesMom
    • Experience with Lymphoplasmacytic L...
    8 months ago
    CookiesMom's Avatar

    Rituxan - & on Imbruvica Daily 420 mg

    Drug or Chemo Therapy

    Minor issues with both. Luckily, handled well & tolerable.

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
    • CookiesMom
    • Experience with Lymphoplasmacytic L...
    8 months ago
    CookiesMom's Avatar

    Thought it was pneumonia. NOPE.

    Oh No

    Needed 6 blood transfusions as blood levels at 4.1 super low. Secondary cold agglutinins doing the PacMan thing w/my blood cells.

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    0 Comments
    • Homans
    • Experience with B-Cell Lymphoma
    about 1 year ago
    Homans' Avatar

    Remission

    Celebration

    After two failed chemo treatments, received CAR-T immunotherapy June of 2019, all cancer, tumors gone. Had 1 year follow up scan, st...

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  3. about 1 year ago
    Buddyritz's Avatar

    Loss

    My wife died on Mother's day, May 10th from MDS, an illness called Pre-leukemia. She was cancer free after chemo treatments but the...

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    • WendyP
    • Experience with Diffuse Large B-Cell Ly...
    over 1 year ago
    WendyP's Avatar

    Side Effects

    chemo brain lasts longer than expected

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    • WendyP
    • Experience with Diffuse Large B-Cell Ly...
    over 1 year ago
    WendyP's Avatar

    Side Effects

    I had a heart attack from the side effects of chemo

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  4. over 1 year ago
    Beaujingles' Avatar

    Wait and See mode until April when platelet count was under 20K. Now on 420MG Imbruvic (aka Ibrutinib), side effects has been some diarrhea

    Procedure or Surgery

    as of 22nd June platelet count is 73K

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
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