1. 26 days ago
    GBMsurvivordad's Avatar

    lifetime caregiver required

    Other Care

    Mom did it dad worked, dad has heart attacks- no more work, mom passes away, older sister takes over caregiving (room and board with...

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    0 Comments
  2. 26 days ago
    GBMsurvivordad's Avatar

    to treat or not to

    Decision Point

    we were given the choice...."prolong the inevitable , quality of life, maybe new treatments in 5 years...if she lasts that long

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    1 Comment
  3. 26 days ago
    GBMsurvivordad's Avatar

    Return home after 4 months

    Celebration

    quiet at home

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    0 Comments
  4. 26 days ago
    GBMsurvivordad's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Temodar- 1st child to receive in US

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  5. 26 days ago
    GBMsurvivordad's Avatar

    Surgery

    Procedure or Surgery

    GBM confirmed...4 surgeries....80% right brain removed

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    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  6. 26 days ago
    GBMsurvivordad's Avatar

    Just Diagnosed

    Oh No

    collapsed at school 7yrs old..... mom took home......temp dropping..calls dr....no worry......calls dad at work....dad say go to er....

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    0 Comments
  7. 26 days ago
    GBMsurvivordad's Avatar

    External radiation

    Radiation

    the side effects still showing up 17 years later

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    Painless Experience: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  8. 5 months ago
    LindaPrescott's Avatar

    CAM (Complementary and Alternative Medicine)

    Other Care

    Acupuncture for anxiety, nausea, facial neuralgia, fibromyalgia.

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    0 Comments
  9. 5 months ago
    LindaPrescott's Avatar

    Finished treatment

    Celebration

    No growth in the lesion. Limited side effects from the lesion.

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    0 Comments
  10. 5 months ago
    LindaPrescott's Avatar

    Depression/Anxiety

    Side Effects

    Controlled with Prozac 30 mg and .25 of clonazapam daily

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    0 Comments
  11. 5 months ago
    LindaPrescott's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Fatigue was bad

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
  12. 5 months ago
    LindaPrescott's Avatar

    External radiation

    Radiation

    Radiation was difficult with fatigue and nausea. Symptoms lasts for months after treatment was completed. 30 treatments in six weeks...

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
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