1. 5 months ago
    Shelane1's Avatar

    Votrient

    Drug or Chemo Therapy

    Tried to take pill. Tumor pain was excessive and vomiting. Finally got down to taking one a day, tumor pain still too much . Catscan...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  2. 5 months ago
    Shelane1's Avatar

    Riibocin

    Clinical Trial

    Drug did not bother him .. took for a couple of months. Tumor did not grow.. but did not shrink enough for surgery.

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  3. 5 months ago
    Shelane1's Avatar

    External radiation

    Radiation

    Did 25 radiation treatments. Really sick. Did not shrink it but held it at bay

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    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. 5 months ago
    Shelane1's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Did Eribulin t University of Chicago. Three rounds. Did not shrink it.

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    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  5. 5 months ago
    Shelane1's Avatar

    Surgery

    Procedure or Surgery

    First diagnosed with kidney cancer.. in surgery found liposarcoma Tore duodenum during surgery. 12 days in hospital . No other trea...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
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    • AnnC
    • Experience with Fibrosarcoma, Adult Soft ...
    6 months ago
    AnnC's Avatar

    External radiation

    Radiation

    Just getting ready to start radiation treatment don’t know how this will be

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    Painless Experience: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • AnnC
    • Experience with Fibrosarcoma, Adult Soft ...
    6 months ago
    AnnC's Avatar

    Money

    Oh No

    My husband hasn’t worked since September- no short term or paid leaves where he works no income I was out of wirk now taking care of...

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    • Iceyhot
    • Experience with Sarcoma - Adult Soft T...
    6 months ago
    Iceyhot's Avatar

    Other

    Clinical Trial

    Just started

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    0 Comments
    • Joojo
    • Experience with Sarcoma - Adult Soft Tis...
    6 months ago
    Joojo's Avatar

    Trying to decide if a few extra months are worth chemo

    Decision Point

    I am depressed but looking at an option in Mexico.

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    0 Comments
    • Missykd
    • Experience with Sarcoma - Adult Soft T...
    6 months ago
    Missykd's Avatar

    Misdiagnosed

    Oh No

    Misdiagnosed in August did not find out cancer existed until end November

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    0 Comments
    • Sbri
    • Experience with Angiosarcomas, Sarcoma
    8 months ago
    Sbri's Avatar

    Oh No

    Surprise to have disease

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    0 Comments
    • Tbluvr
    • Experience with Sarcoma - Adult Soft Ti...
    8 months ago
    Tbluvr's Avatar

    Finished treatment

    Celebration

    Chemo is done. Scams came back good. Still have radiation to do but nice to know at moment im cancer free. Rescan in 3 months

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    0 Comments
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