• acrispell
    • Experience with Synovial Sarcoma, Ad...
    2 months ago
    acrispell's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Dad will begin chemo treatments next week

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • acrispell
    • Experience with Synovial Sarcoma, Ad...
    2 months ago
    acrispell's Avatar

    Surgery

    Procedure or Surgery

    Leg amputation due to synovial cell sarcoma behind the knee cap

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    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  1. 6 months ago
    Birdwatcher2363's Avatar

    Decided to try Moffitt Cancer Center in Tampa, FL

    Decision Point

    Saw medical oncologist last week. Have an appointment next week for CT scans and to see PA and surgeon.

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    0 Comments
  2. 6 months ago
    Birdwatcher2363's Avatar

    Second opinion at Baptist MD Anderson in Jacksonville, FL

    Decision Point

    Saw surgeon, medical and radiation oncologists. Surgeon said to amputate the leg. Medical oncologist said chemo is out.

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    0 Comments
  3. 7 months ago
    Birdwatcher2363's Avatar

    Cancer has spread/Metastasized

    Oh No

    Waiting to hear if I will get my PET Scan. Very frustrating.

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    1 Comment
  4. 8 months ago
    Birdwatcher2363's Avatar

    Need a second opinion

    Decision Point

    Surgeon said she cannot operate on tumor. Her only action would be amputation. She suggested chemo. Sarcoma oncologist does not thin...

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    0 Comments
  5. 8 months ago
    Birdwatcher2363's Avatar

    ULTRASOUND GUIDED NEEDLE BIOPSY RT FEMUR

    Procedure or Surgery

    12/12/2019. Positive for Spindle cell sarcoma.

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  6. 8 months ago
    Birdwatcher2363's Avatar

    Cancer is back/Recurred

    Oh No

    MRI shows a small tumor on the side of my right femur inside the surgically bed

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    0 Comments
  7. 8 months ago
    Birdwatcher2363's Avatar

    MRI RT FEMUR

    Procedure or Surgery

    21/2 hours on the table.

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    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  8. 8 months ago
    Birdwatcher2363's Avatar

    Surgery

    Procedure or Surgery

    11/01/2019. Another procedure with Interventional Radiology to go after cancer again in another site in my lung. This time they had ...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  9. 8 months ago
    Birdwatcher2363's Avatar

    Just Diagnosed

    Oh No

    10/23/2019. CT scan shows more cancer in another lung lobe.

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    0 Comments
  10. 8 months ago
    Birdwatcher2363's Avatar

    Surgery

    Procedure or Surgery

    07/23/2019. Interventional Radiologist performed a procedure to go in with a probe to do an ablation to the cancer. They put in a pr...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
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