• honey216
    • Experience with Spindle Cell Tumor
    about 1 month ago
    honey216's Avatar

    Hypothyroidism

    Side Effects

    Thanks to my neck and chest being radiated 2x in 10 years, my thyroid no longer functions normally. That means I'm taking Levoxyl fo...

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    • Cbuckson
    • Experience with Sarcoma - Adult Soft ...
    4 months ago
    Cbuckson's Avatar

    Surgery

    Procedure or Surgery

    I had a radical resection of my left shoulder. 1 muscle (teres minor) was completely removed and parts of 3 other muscles. Lots les...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  1. 7 months ago
    Shelane1's Avatar

    Votrient

    Drug or Chemo Therapy

    Tried to take pill. Tumor pain was excessive and vomiting. Finally got down to taking one a day, tumor pain still too much . Catscan...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  2. 7 months ago
    Shelane1's Avatar

    Riibocin

    Clinical Trial

    Drug did not bother him .. took for a couple of months. Tumor did not grow.. but did not shrink enough for surgery.

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  3. 7 months ago
    Shelane1's Avatar

    External radiation

    Radiation

    Did 25 radiation treatments. Really sick. Did not shrink it but held it at bay

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    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 7 months ago
    Shelane1's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Did Eribulin t University of Chicago. Three rounds. Did not shrink it.

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    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  5. 7 months ago
    Shelane1's Avatar

    Surgery

    Procedure or Surgery

    First diagnosed with kidney cancer.. in surgery found liposarcoma Tore duodenum during surgery. 12 days in hospital . No other trea...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • AnnC
    • Experience with Fibrosarcoma, Adult Soft ...
    8 months ago
    AnnC's Avatar

    External radiation

    Radiation

    Just getting ready to start radiation treatment don’t know how this will be

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    Painless Experience: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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    • AnnC
    • Experience with Fibrosarcoma, Adult Soft ...
    8 months ago
    AnnC's Avatar

    Money

    Oh No

    My husband hasn’t worked since September- no short term or paid leaves where he works no income I was out of wirk now taking care of...

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    • Iceyhot
    • Experience with Sarcoma - Adult Soft T...
    8 months ago
    Iceyhot's Avatar

    Other

    Clinical Trial

    Just started

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    • Joojo
    • Experience with Sarcoma - Adult Soft Tis...
    9 months ago
    Joojo's Avatar

    Trying to decide if a few extra months are worth chemo

    Decision Point

    I am depressed but looking at an option in Mexico.

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    • Missykd
    • Experience with Sarcoma - Adult Soft T...
    9 months ago
    Missykd's Avatar

    Misdiagnosed

    Oh No

    Misdiagnosed in August did not find out cancer existed until end November

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