1. 6 months ago
    Shelane1's Avatar

    Votrient

    Drug or Chemo Therapy

    Tried to take pill. Tumor pain was excessive and vomiting. Finally got down to taking one a day, tumor pain still too much . Catscan...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  2. 6 months ago
    Shelane1's Avatar

    Riibocin

    Clinical Trial

    Drug did not bother him .. took for a couple of months. Tumor did not grow.. but did not shrink enough for surgery.

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  3. 6 months ago
    Shelane1's Avatar

    External radiation

    Radiation

    Did 25 radiation treatments. Really sick. Did not shrink it but held it at bay

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    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. 6 months ago
    Shelane1's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Did Eribulin t University of Chicago. Three rounds. Did not shrink it.

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    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  5. 6 months ago
    Shelane1's Avatar

    Surgery

    Procedure or Surgery

    First diagnosed with kidney cancer.. in surgery found liposarcoma Tore duodenum during surgery. 12 days in hospital . No other trea...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Cavmom
    • Experience with Liposarcoma
    over 1 year ago
    Cavmom's Avatar

    Side Effects

    Through all of the side effects of the chemo, the disappointment every time they didn't work, the surgeries, and knowing it will re...

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    • Cavmom
    • Experience with Liposarcoma
    over 1 year ago
    Cavmom's Avatar

    Surgery

    Procedure or Surgery

    These treatments didn't work and all tumors grew. Decision made to remove mass from abdomen first. This was done between chemo type...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Cavmom
    • Experience with Liposarcoma
    over 1 year ago
    Cavmom's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Doxo didn't work. Switched to Gemzar and taxotere. Had thinning of hair before but lost so much this time I buzzed my head and wore...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Cavmom
    • Experience with Liposarcoma
    over 1 year ago
    Cavmom's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Ibrance did nothing. Tried Doxorubicin with Lartruvo. First dose burned my arm vein. Had port installed before second dose.

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Cavmom
    • Experience with Liposarcoma
    over 1 year ago
    Cavmom's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Tried Ibrance first

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Cavmom
    • Experience with Liposarcoma
    over 1 year ago
    Cavmom's Avatar

    Cancer has spread/Metastasized

    Oh No

    Just after my one year clear another scan showed not only had it recurred but it also spread to my lungs.

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    0 Comments
    • Cavmom
    • Experience with Liposarcoma
    over 1 year ago
    Cavmom's Avatar

    Surgery

    Procedure or Surgery

    Abdominal liposarcoma. Huge mass removed along with my left kidney. They got it all, clean margins. But I was told 50 50 chance of r...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
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