• Joy1976
    • Experience with Hemangiopericytoma
    almost 6 years ago
    Joy1976's Avatar

    MRI

    Other Care

    My Neurosurgeon sent me in for a MRI 2 months before it was due (I'm supposed to have one every 3 months for 5 years, then every 6 m...

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    1 Comment
    • Joy1976
    • Experience with Hemangiopericytoma
    almost 6 years ago
    Joy1976's Avatar

    PAIN

    Symptom Management

    I'm having random pain...in one finger, in both arms, both knees and it feels like bone pain. I also have a weird red, kinda raised ...

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    0 Comments
    • Joy1976
    • Experience with Hemangiopericytoma
    almost 6 years ago
    Joy1976's Avatar

    Other

    Symptom Management

    I wish sometimes I had a more common cancer, mine is so lonely and I wish I could just find ONE person with it in their spine too. I...

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    0 Comments
    • Joy1976
    • Experience with Hemangiopericytoma
    almost 6 years ago
    Joy1976's Avatar

    Large/lots of lymph nodes on MRI

    Oh No

    I recently had an MRI done and the dr said it showed many lymph nodes in the 9mm range...is that a bad sign? They said they wouldn't...

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    0 Comments
    • Joy1976
    • Experience with Hemangiopericytoma
    almost 6 years ago
    Joy1976's Avatar

    Rad Grad!

    Milestones

    Finished 6 weeks of radiation on Thursday! Yahoo!

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    0 Comments
    • reginak
    • Experience with Hemangiopericytoma
    almost 6 years ago
    reginak's Avatar

    Relationship

    Loss

    This month its pretty much final - I've lost my husband and he has given our kids to his parents as a result of my brain cancer. I ...

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    3 Comments
    • Joy1976
    • Experience with Hemangiopericytoma
    almost 6 years ago
    Joy1976's Avatar

    Fatigue (tiredness)

    Side Effects

    So tired all the time and I've only had 15 radiation days with 13 to go. Some days I'm awake for 3 hours other days all I do is lay ...

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    0 Comments
    • Joy1976
    • Experience with Hemangiopericytoma
    almost 6 years ago
    Joy1976's Avatar

    External radiation

    Radiation

    Ugh! 12 treatments left! Radiation is a bummer. I'm nauseous all the time and some days I'm only awake for a couple hours, I'm exhau...

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    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Joy1976
    • Experience with Hemangiopericytoma
    almost 6 years ago
    Joy1976's Avatar

    Surgery

    Procedure or Surgery

    I had surgery to remove the unknown mass growing in my spine. The first thing I remember afterwards was crying and pushing that morp...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Joy1976
    • Experience with Hemangiopericytoma
    almost 6 years ago
    Joy1976's Avatar

    Other

    Oh No

    After 2 years of right side pain, so many tests and the removal of my gallbladder, they finally saw what was hurting me. A mass of s...

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    0 Comments
  1. about 6 years ago
    mitchell1159's Avatar

    This the fifth chemo I have tried and if it does not work I am considering stopping it alltogether.

    Decision Point

    I have been so sick over the past few years and can not spend the rest of my life this way. My children are suffering as a result an...

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    1 Comment
  2. about 6 years ago
    mitchell1159's Avatar

    Fatigue (tiredness)

    Side Effects

    The side effects are many and all hinder my ability to care for my children in the way I would like to. I rarely get to play with th...

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    0 Comments
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