• Hollie2008
    • Experience with Dermatofibrosarcoma...
    about 7 years ago
    Hollie2008's Avatar

    Birthday

    Celebration

    I just had a birthday a week ago. In October it will be 4 years since I learned I had cancer. I saw the oncologist a few weeks ago...

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    • Hollie2008
    • Experience with Dermatofibrosarcoma...
    about 7 years ago
    Hollie2008's Avatar

    External radiation

    Radiation

    Once my incision from the surgery healed I underwent 6 weeks of radiation going 5 days a week. I underwent a CT scan and the markin...

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
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    • Hollie2008
    • Experience with Dermatofibrosarcoma...
    about 7 years ago
    Hollie2008's Avatar

    Surgery

    Procedure or Surgery

    The first step I had to undergo was a surgical procedure called a "wide-excision". I had this done in October 2008. The surgery we...

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Hollie2008
    • Experience with Dermatofibrosarcoma...
    about 7 years ago
    Hollie2008's Avatar

    Diagnosed

    Oh No

    I had a spot on my back near the spine which I had asked 2 physicians about and they both told me it was a cyst and not to worry abo...

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    • PingHu2012
    • Experience with Dermatofibrosarcoma...
    about 7 years ago
    PingHu2012's Avatar

    Body part/function

    Loss

    A large portion of soft tissue was removed from the right upper thigh so it's not debilitating but might limp for the rest of my life.

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    • PingHu2012
    • Experience with Dermatofibrosarcoma...
    about 7 years ago
    PingHu2012's Avatar

    External radiation

    Radiation

    Radiation therapy was administered but the wound wasn't completely healed so it was burning the skin. Had to stop at 15 treatments i...

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    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • PingHu2012
    • Experience with Dermatofibrosarcoma...
    about 7 years ago
    PingHu2012's Avatar

    Surgery

    Procedure or Surgery

    Recovery typically takes a couple of months but this time since radiation therapy was administered before the surgery, it's taking l...

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • PingHu2012
    • Experience with Dermatofibrosarcoma...
    about 7 years ago
  1. over 7 years ago
    AkashaBlonde's Avatar

    Finished treatment

    Celebration

    I have been healing fine, but mentally I still worry about whether the cancer will come back. Will I be one of the metastasizing can...

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  2. over 7 years ago
    AkashaBlonde's Avatar

    Decision Point

    Mohs or Wide Excision: This type of cancer only metastasizes in 2 of the 21 of patients diagnosed. But what if I one of them? ...

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  3. over 7 years ago
    AkashaBlonde's Avatar

    Surgery

    Procedure or Surgery

    For me, the Mohs Microsurgery involved cutting a quarter sized circle of skin to the muscle after being numbed with local anesthesia...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  4. over 7 years ago
    AkashaBlonde's Avatar

    Diagnosed

    Oh No

    A few months before my 27th birthday, I had gotten a massage and she felt that a small dime sized discoloration on my left shoulder ...

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    0 Comments
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