• LSWP
    • Experience with Alveolar Soft-Part Sarcoma
    about 3 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Chemo is a 54 week treatment. I am unable to partake in school at this time

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Not Specified
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    • LSWP
    • Experience with Alveolar Soft-Part Sarcoma
    about 3 years ago
    LSWP's Avatar

    Surgery

    Procedure or Surgery

    Chest drain, bone marrow extraction, and lymph node extraction.

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    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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    • LSWP
    • Experience with Alveolar Soft-Part Sarcoma
    about 3 years ago
    LSWP's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    Standard portacath

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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    • LSWP
    • Experience with Alveolar Soft-Part Sarcoma
    about 3 years ago
    LSWP's Avatar

    Cancer has spread/Metastasized

    Oh No

    Diagnosed with stage IV Alveolar Rhabomyosarcoma with an eight inch tumor

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    • Aly5hajad3
    • Experience with Alveolar Soft-Part ...
    over 5 years ago
    Aly5hajad3's Avatar

    Nausea/Vomiting

    Side Effects

    Sickness, hair loss, low red & white blood cells so transfusions, depression, lots of potassium drips weight loss etc

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    • Aly5hajad3
    • Experience with Alveolar Soft-Part ...
    over 5 years ago
    Aly5hajad3's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Super strong, not everyone can cope on it

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Aly5hajad3
    • Experience with Alveolar Soft-Part ...
    over 5 years ago
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    Chemo not working

    Oh No

    Cancer grew and I faced arm amputation

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    • Aly5hajad3
    • Experience with Alveolar Soft-Part ...
    over 5 years ago
    Aly5hajad3's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Wasn't too bad didn't feel sick etc hair started coming back BUT that's because it wasn't working

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
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    • Aly5hajad3
    • Experience with Alveolar Soft-Part ...
    over 5 years ago
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    Cancer is back/Recurred

    Oh No

    Although treatment finished I had pain under my arm a tumour was sitting in and trapping a nerve.

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    • Aly5hajad3
    • Experience with Alveolar Soft-Part ...
    over 5 years ago
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    Radiation

    Got 3rd degree radiation burns and had to go to the Mersey burns unit

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    Painless Experience: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
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    • Aly5hajad3
    • Experience with Alveolar Soft-Part ...
    over 5 years ago
    Aly5hajad3's Avatar

    Surgery

    Procedure or Surgery

    Tumor & muscle removal

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    Went as Expected: Strongly Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Aly5hajad3
    • Experience with Alveolar Soft-Part ...
    over 5 years ago
    Aly5hajad3's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Many different chemo's for both if my diagnoses. Each very strong and very difficult to cope with. LOTS of side effects and hair los...

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
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