• AlanGK
    • Experience with Pleomorphic Undifferent...
    11 months ago
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    Celebration

    It has been 5 years since the surgery to remove my tumor so I have graduated to once a year visits to MD Anderson. Pain from chemo d...

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    • Paulab
    • Experience with Pleomorphic Undifferent...
    12 months ago
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    Surgery

    Procedure or Surgery

    Happy to have both the tumor (named Pearl) out & pain gone!

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • AlanGK
    • Experience with Pleomorphic Undifferent...
    about 1 year ago
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    Anniversary

    Celebration

    5 years out without metastasis. Down to 1 visit per year for screening.

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    0 Comments
  1. over 1 year ago
    HelpPeaches' Avatar

    Just Diagnosed

    Oh No

    Hello ... my mom was just diagnosed with high grade pleomorphic undifferentiated dermal sarcoma ... stage 5. wondering if anyone has...

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    0 Comments
    • Cally
    • Experience with Pleomorphic Undifferenti...
    over 2 years ago
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    Lost loved one

    Loss

    I lost my twin sister 3 years ago to cancer and my father 20 years ago to the same disease....I now know what it is like to be the c...

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    0 Comments
    • Cally
    • Experience with Pleomorphic Undifferenti...
    over 2 years ago
    Cally's Avatar

    My oh no is beign diagnosed with cancer

    Oh No

    I went to the doctor because I was experiencing severe muscle spasms in my neck, as he was walking out of the room, I mentioned this...

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    • AlanGK
    • Experience with Pleomorphic Undifferent...
    almost 5 years ago
    AlanGK's Avatar

    tumor was 99% necrotic at surgery

    Celebration

    scans are clear 12 months post surgery

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    • AlanGK
    • Experience with Pleomorphic Undifferent...
    almost 5 years ago
    AlanGK's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Finished aggressive chemo earlier this year, but still on heavy doses of pain meds. Hate chemo brain and pain med brain. Started wit...

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • AlanGK
    • Experience with Pleomorphic Undifferent...
    almost 5 years ago
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    left internal hemi-pelvectomy

    Procedure or Surgery

    hemi-pelvoctomy with reconstruction using fibula

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Hobbsbob
    • Experience with Pleomorphic Undiffere...
    about 6 years ago
    Hobbsbob's Avatar

    Clinical Trial

    They told us radiation was not an option. The cancer is in the liver, a spot on the diaphram d another near the spine. Applying t...

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    1 Comment
    • Hobbsbob
    • Experience with Pleomorphic Undiffere...
    about 6 years ago
    Hobbsbob's Avatar

    Surgery

    Procedure or Surgery

    A tumor one and half times the size of a football was removed from chest cavity. What they could not remove where the small spots n...

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Hobbsbob
    • Experience with Pleomorphic Undiffere...
    about 6 years ago
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    Cancer has spread/Metastasized

    Oh No

    It was originally thought to be contained but learned it was not

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    0 Comments
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