• plook
    • Experience with Thymoma
    10 months ago
    plook's Avatar

    Surgery

    Procedure or Surgery

    Had a sternotomy, pretty tough, 14 days as inpatient.

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  1. 11 months ago
  2. 11 months ago
    November's Avatar

    Breakthrough

    Celebration

    Surgery

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    0 Comments
  3. 11 months ago
    November's Avatar

    Surgery

    Procedure or Surgery

    Can be feel worse in ICU, but don’t tired to straggling on your conditions.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
  4. 12 months ago
    Rossana's Avatar

    Not to get Chemotherapy. Wait and Watch

    Decision Point

    These cells are growing too slowly

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    0 Comments
    • plook
    • Experience with Thymoma
    about 1 year ago
    plook's Avatar

    Constipation

    Side Effects

    Severe constipation due to Zofran especially orally immediately post-chemo treatment. Was in bed practically for two days. Will av...

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    0 Comments
    • plook
    • Experience with Thymoma
    about 1 year ago
    plook's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Losing some hearing due to cisplatin. Losing hair now. Appetite is suspect on most days.

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • ikedo
    • Experience with Thymoma
    over 4 years ago
    ikedo's Avatar

    Problem with doctor

    Oh No

    Never explained any of the cancer or surgery no details

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    0 Comments
    • ikedo
    • Experience with Thymoma
    over 4 years ago
    ikedo's Avatar

    should I get 2 opinion

    Decision Point

    I got 2 different path reports one stage 1 with rad the other stage 2 no rad

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    0 Comments
    • ikedo
    • Experience with Thymoma
    over 4 years ago
    ikedo's Avatar

    Depression/Anxiety

    Side Effects

    I am having problems with labored breathing esp after little physical exertion

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    0 Comments
    • ikedo
    • Experience with Thymoma
    over 4 years ago
    ikedo's Avatar

    Surgery

    Procedure or Surgery

    My surgeon never explained what the surgery entailed or what not to do after precautions I am so upset with my care from the doctors...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
  5. over 4 years ago
    StephanieC's Avatar

    what to do

    Decision Point

    The doctor told me that I need to have a transsternal thymectomy instead of VATS because of how close the growth is to my organs and...

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    0 Comments
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