• Vanryck
    • Experience with Hürthle Cell Carcinoma...
    26 days ago
    Vanryck's Avatar

    Type of surgeon?

    Decision Point

    My wife has been diagnosed with hurthle cell carcinoma. It was discovered during the removal of left node of thyroid. It was perf...

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    0 Comments
    • kdiamond
    • Experience with Papillary Carcinoma, ...
    3 months ago
    kdiamond's Avatar

    Surgery

    Procedure or Surgery

    I was told the growth was large enough to warrant the total removal of my thyroid and that this was the first step of treatment. I d...

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    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • kdiamond
    • Experience with Papillary Carcinoma, ...
    3 months ago
    kdiamond's Avatar

    Health insurance issue

    Oh No

    I convinced myself that the bump on my neck was nothing. It didn’t hurt, so it was fine. My boyfriend said it was fine, my younger s...

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    0 Comments
    • kdiamond
    • Experience with Papillary Carcinoma, ...
    3 months ago
    kdiamond's Avatar

    Problem with doctor

    Oh No

    It was my senior year of college and it dawned on me that I didn’t have a doctor and hadn’t had a basic check up since I was in ele...

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    0 Comments
    • GregP_WN
    • Experience with Thyroid Cancer
    6 months ago
    GregP_WN's Avatar

    Surgery

    Procedure or Surgery

    Surgery was to perform a laryngectomy, thyroid cancer was discovered during the laryngectomy.

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    Went as Expected: Agree
    Minimal Recovery: Not Specified
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • GregP_WN
    • Experience with Thyroid Cancer
    6 months ago
    GregP_WN's Avatar

    Cancer has spread/Metastasized

    Oh No

    'we are not sure yet if this is a Met or a new primary. We hope to know something this Friday.

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    0 Comments
    • Ian
    • Experience with Medullary Thyroid Carcinoma
    about 1 year ago
    Ian's Avatar

    Surgery

    Procedure or Surgery

    Remove remaining cancerous lymph nodes.

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • joanna1112
    • Experience with Papillary Carcinoma...
    over 1 year ago
    joanna1112's Avatar

    Remission

    Celebration

    After several treatments and consistently good bloodwork, the doctor told me there was no evidence of disease!

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    1 Comment
    • joanna1112
    • Experience with Papillary Carcinoma...
    over 1 year ago
    joanna1112's Avatar

    Depression/Anxiety

    Side Effects

    Experienced depression about 6 months after diagnosis and treatment while trying to find the "new normal."

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    0 Comments
    • joanna1112
    • Experience with Papillary Carcinoma...
    over 1 year ago
    joanna1112's Avatar

    Fatigue (tiredness)

    Side Effects

    Extreme fatigue after having thyroid removed

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    0 Comments
    • joanna1112
    • Experience with Papillary Carcinoma...
    over 1 year ago
    joanna1112's Avatar

    Saliva changes (thick saliva)

    Side Effects

    Pain in salivary glands after I-131

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    0 Comments
    • joanna1112
    • Experience with Papillary Carcinoma...
    over 1 year ago
    joanna1112's Avatar

    Internal radiation

    Radiation

    Received I-131 (radioactive iodine); received a total of 3 treatment doses over 3 years. I experienced some immediate side effects (...

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    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
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