• Sara0524
    • Experience with Sarcoma, Vulvar Cancer
    6 months ago
    Sara0524's Avatar

    Surgery

    Procedure or Surgery

    Surgery and all the technicalities were all fine. My reactions to the world have been so difficult. I have not had any support from ...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • sharkbayte
    • Experience with Melanoma, Vulvar Ca...
    over 1 year ago
    sharkbayte's Avatar

    Surgery

    Procedure or Surgery

    10 months after surgery I had to have another one just to go in and see what was happening as I was still bleeding and having leakin...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • sharkbayte
    • Experience with Melanoma, Vulvar Ca...
    over 1 year ago
    sharkbayte's Avatar

    Finished treatment

    Celebration

    My first year PetScan is clear as all 6 month and 3 month were so I am hoping all the following will be clear as well.

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    0 Comments
    • sharkbayte
    • Experience with Melanoma, Vulvar Ca...
    over 1 year ago
    sharkbayte's Avatar

    Vaginal dryness or irritation

    Side Effects

    I have a leak of what they tested is water from my vagina not urine no fistulas no reason for a leak. I also have dryness, anemia, s...

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    0 Comments
    • sharkbayte
    • Experience with Melanoma, Vulvar Ca...
    over 1 year ago
    sharkbayte's Avatar

    External radiation

    Radiation

    I had some skin sloughing off, but I only had 5 treatments but the doses were extremely high, its one year later and I am still expe...

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  1. over 1 year ago
    MaryStephanie's Avatar

    Hospitalization

    Other Care

    I want to know what vulvectomy patients are doing for a 'padding' to fill in the lopsidedness and tenderness involved. Also any sugg...

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    0 Comments
    • Fancee
    • Experience with Squamous Cell Carcinoma...
    over 1 year ago
    Fancee's Avatar

    Relationship

    Loss

    My children have become critical of everything I do, my adult daughter has disappeared entirely from my life. Haven't spoke to her i...

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    1 Comment
    • Fancee
    • Experience with Squamous Cell Carcinoma...
    over 1 year ago
    Fancee's Avatar

    My mind/Sense of Humor

    Loss

    I feel lost and alone, comments that people make about my self isolation seem hurtful to me, when normally I would quip back or laug...

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    0 Comments
    • Fancee
    • Experience with Squamous Cell Carcinoma...
    over 1 year ago
    Fancee's Avatar

    Depression/Anxiety

    Side Effects

    I'm not usually an anxious person, but lately, I've been more sensitive to certain comments. I feel like my sense of humor is gone.

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    0 Comments
    • Fancee
    • Experience with Squamous Cell Carcinoma...
    over 1 year ago
    Fancee's Avatar

    Partial vulvectomy with wide local excision & biopsy of anal lesions

    Procedure or Surgery

    I was not expecting the amount of pain

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    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Fancee
    • Experience with Squamous Cell Carcinoma...
    over 1 year ago
    Fancee's Avatar

    Misdiagnosed

    Oh No

    Initially was told I needed to have hysterectomy, got 2nd, then 3rd opinion, not cervical, but vulvar precancerous lesions. Also, h...

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    0 Comments
    • Vsinn2000
    • Experience with Squamous Cell Carcin...
    about 2 years ago
    Vsinn2000's Avatar

    External radiation

    Radiation

    Given the location of my tumor it was an extremely difficult and humiliating experience. I also had severe burns. The after effects...

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    Painless Experience: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
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