• MWaldrup
    • Experience with Cancer of Unknown Pri...
    2 months ago
    MWaldrup's Avatar

    chemo or not?

    Decision Point

    I began this journey taking Revlamid then subsequently wrapped up that. I've progressed and now, it's chemo time yet I've always sa...

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    0 Comments
    • Anne_Mack
    • Experience with Squamous Cell Cancer...
    4 months ago
    Anne_Mack's Avatar

    Ultrasound, CT, PET scan, interventional radiology needle biopsy

    Procedure or Surgery

    Ultrasounds and CT were as expected- quick and easy. The second needle biopsy had to be CT guided with an interventional radiologist...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • Anne_Mack
    • Experience with Squamous Cell Cancer...
    4 months ago
    Anne_Mack's Avatar

    Just Diagnosed

    Oh No

    My husband noticed an enlarged lymph node on the right side of his neck in late January. By mid February, after having an ultrasound...

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    1 Comment
    • DLA1965
    • Experience with Squamous Cell Cancer, ...
    about 1 year ago
    DLA1965's Avatar

    Radiation

    I start next week. Radiation to my pelvis and abdomen.

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    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • DLA1965
    • Experience with Squamous Cell Cancer, ...
    about 1 year ago
    DLA1965's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I start next week.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • DLA1965
    • Experience with Squamous Cell Cancer, ...
    about 1 year ago
    DLA1965's Avatar

    Surgery

    Procedure or Surgery

    On May 1st , I underwent surgery to have a 7 cm mass removed from deep in my abdomen. The procedure was supposed to take five hours...

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    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • susie54
    • Experience with Neuroendocrine Carcino...
    over 1 year ago
    susie54's Avatar

    Surgery versus systemic medical treatment

    Decision Point

    Back in 2015 NIH picked up metastasis to peripancreatic lymph node on gallium68 Scan. Subsequent investigation with multiple specia...

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    0 Comments
    • ginger50
    • Experience with Neuroendocrine Carcin...
    over 1 year ago
    ginger50's Avatar

    Surgery

    Procedure or Surgery

    post op bleed, post op atrial fibrillation

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • ginger50
    • Experience with Neuroendocrine Carcin...
    over 1 year ago
    ginger50's Avatar

    Pain

    Side Effects

    anxious about disease progression,pain from surgery

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    0 Comments
    • Cvg
    • Experience with Cancer of Unknown Primary
    over 1 year ago
    • Melitta
    • Experience with Neuroendocrine Carcino...
    over 1 year ago
    Melitta's Avatar

    Anemia (low red blood cell counts)

    Side Effects

    Side effect of Chemo (only one cicle of three days and no more) we went to Mexico for alternative treatment.

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    0 Comments
    • Melitta
    • Experience with Neuroendocrine Carcino...
    over 1 year ago
    Melitta's Avatar

    CAM (Complementary and Alternative Medicine)

    Other Care

    We went to a Hospital specialized in advanced Cancer patients in Mexico.

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    0 Comments
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