• Crys
    • Experience with Invasive, Squamous Cell C...
    about 1 month ago
    Crys' Avatar

    Surgery

    Procedure or Surgery

    Feeding tube placed in preparation for chemo and radiation to oral cavity. Hubby did not want to but later realized the wisdom of this.

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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    • Crys
    • Experience with Invasive, Squamous Cell C...
    about 1 month ago
    Crys' Avatar

    Surgery

    Procedure or Surgery

    My husband is the warrior patient. Moes surgery for what appeared to be a white pimple at edge of right upper lip.

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    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Crys
    • Experience with Invasive, Squamous Cell C...
    about 1 month ago
    Crys' Avatar

    Surgery

    Procedure or Surgery

    My husband is the warrior patient. Moes surgery for what appeared to be a white pimple at right upper lip. Sent to Cancer Center fo...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Crys
    • Experience with Invasive, Squamous Cell C...
    about 1 month ago
    Crys' Avatar

    External radiation

    Radiation

    Twice daily for 6 weeks. 3rd round and potential for extreme long lasting effects.

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    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Crys
    • Experience with Invasive, Squamous Cell C...
    about 1 month ago
    Crys' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    This was a lighter round of chemo to boost the extreme radiation

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    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Crys
    • Experience with Invasive, Squamous Cell C...
    about 1 month ago
    Crys' Avatar

    Surgery

    Procedure or Surgery

    Feeding tube placed in preparation for chemo and radiation of oral cavity

    Read More

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • Crys
    • Experience with Invasive, Squamous Cell C...
    about 1 month ago
    Crys' Avatar

    My husband is the warrior patient. Moes surgery at Dermatologist for what looked like a white pimple at lip.

    Procedure or Surgery

    All surprised at how deep it went. Did not clear margin. Sent to Cancer Center for Chemo and Radiation

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    Went as Expected: Disagree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Crys
    • Experience with Invasive, Squamous Cell C...
    about 1 month ago
    Crys' Avatar

    Cancer has spread/Metastasized

    Oh No

    Chemo/radiation not successful. Worst case scenarios of partially freezing swallowing mechanism means feeding tube will always rema...

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    0 Comments
    • Crys
    • Experience with Invasive, Squamous Cell C...
    about 1 month ago
    Crys' Avatar

    Opdivo

    Clinical Trial

    Currently on Opdivo for head and neck cancer. First scans (3 mon) showed shrinking cancer cells. Second scans (6 mon) showed stab...

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    • Crys
    • Experience with Invasive, Squamous Cell C...
    about 1 month ago
    Crys' Avatar

    Major jaw replacement surgery

    Decision Point

    Recurred in jaw bone and along nerve to base of skull. Major surgery to replace jawbone with leg bone and then 3rd round of chemo a...

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    0 Comments
    • Crys
    • Experience with Invasive, Squamous Cell C...
    about 1 month ago
    Crys' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Highly toxic in oral area. Required suspending treatment for max allowed and restarting.

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Crys
    • Experience with Invasive, Squamous Cell C...
    about 1 month ago
    Crys' Avatar

    Surgery

    Procedure or Surgery

    Chemo/radiation not successful. Cancer aggressive from lip, down chin. Did not get clear margins in surgery. Disfigured. Hyperbaric ...

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
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