• barbie
    • Experience with Bile Duct (Cholangiocar...
    over 7 years ago
    barbie's Avatar

    Diagnosed

    Oh No

    Today my doctor called me and I had to say three times "come again". He said my biopsy was positive and I had bile duct cancer. It...

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    • Cerwinner
    • Experience with Bile Duct (Cholangio...
    over 7 years ago
    Cerwinner's Avatar

    Internal radiation

    Radiation

    IVR

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    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Cerwinner
    • Experience with Bile Duct (Cholangio...
    over 7 years ago
    Cerwinner's Avatar

    Procedure or Surgery

    Could not operate, too many tumors.

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Cerwinner
    • Experience with Bile Duct (Cholangio...
    over 7 years ago
    Cerwinner's Avatar

    Oh No

    Spots on liver

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    0 Comments
    • Gram517
    • Experience with Bile Duct (Cholangioca...
    over 7 years ago
    Gram517's Avatar

    Constipation

    Side Effects

    chemo brain, constipation, fatigue, loss of appetite, thirst, general uckiness

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    0 Comments
    • RLM
    • Experience with Intrahepatic, Bile Duct Ca...
    over 7 years ago
    RLM's Avatar

    Cancer has spread/Metastasized

    Oh No

    Cancer Metastasized to lungs.

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    0 Comments
    • RLM
    • Experience with Intrahepatic, Bile Duct Ca...
    over 7 years ago
    RLM's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Chemo type changed.

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    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    1 Comment
    • RLM
    • Experience with Intrahepatic, Bile Duct Ca...
    over 7 years ago
    RLM's Avatar

    Surgery

    Procedure or Surgery

    Attempted resection of liver where tumor was. More cancer found in liver than previously showed up on CT.

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    Went as Expected: Strongly Disagree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • RLM
    • Experience with Intrahepatic, Bile Duct Ca...
    over 7 years ago
    RLM's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Sick and tired mist of the time.

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    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • BobbiW
    • Experience with Bile Duct (Cholangiocar...
    over 7 years ago
    BobbiW's Avatar

    Home care

    Other Care

    We met yesterday with a Home Care Assessor. The Home Health Care nurse will be coming by once a week to do vitals, etc. They are a...

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    0 Comments
    • BobbiW
    • Experience with Bile Duct (Cholangiocar...
    over 7 years ago
    BobbiW's Avatar

    Taste change/loss

    Side Effects

    UGH without a doubt!! My tastes and cravings change almost hourly. This makes it difficult for my husband to prepare things for me...

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    0 Comments
    • BobbiW
    • Experience with Bile Duct (Cholangiocar...
    over 7 years ago
    BobbiW's Avatar

    Swelling (edema)

    Side Effects

    The swelling in my legs (from toes up to my thighs), has been a continuous issue since I began treatment. Initially, only 1 leg was...

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    0 Comments
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