• RLM
    • Experience with Intrahepatic, Bile Duct Ca...
    almost 7 years ago
    RLM's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Sick and tired mist of the time.

    Read More

    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • BobbiW
    • Experience with Bile Duct (Cholangiocar...
    almost 7 years ago
    BobbiW's Avatar

    Home care

    Other Care

    We met yesterday with a Home Care Assessor. The Home Health Care nurse will be coming by once a week to do vitals, etc. They are a...

    Read More

    0 Comments
    • BobbiW
    • Experience with Bile Duct (Cholangiocar...
    almost 7 years ago
    BobbiW's Avatar

    Taste change/loss

    Side Effects

    UGH without a doubt!! My tastes and cravings change almost hourly. This makes it difficult for my husband to prepare things for me...

    Read More

    0 Comments
    • BobbiW
    • Experience with Bile Duct (Cholangiocar...
    almost 7 years ago
    BobbiW's Avatar

    Swelling (edema)

    Side Effects

    The swelling in my legs (from toes up to my thighs), has been a continuous issue since I began treatment. Initially, only 1 leg was...

    Read More

    0 Comments
    • BobbiW
    • Experience with Bile Duct (Cholangiocar...
    almost 7 years ago
    BobbiW's Avatar

    Low platelet counts (thrombocytopenia)

    Side Effects

    This occurs at approx. 1-week after the 2nd chemo treatment of Gemzar. I've suffered from severe nose bleeds, bringing me to the ER...

    Read More

    0 Comments
    • BobbiW
    • Experience with Bile Duct (Cholangiocar...
    almost 7 years ago
    BobbiW's Avatar

    Constipation

    Side Effects

    Now using Colace stool softeners, which seem to help some.....just having to get up and "go" nearly every 1/2 hour. UGH!!!

    Read More

    0 Comments
    • BobbiW
    • Experience with Bile Duct (Cholangiocar...
    almost 7 years ago
    BobbiW's Avatar

    Bleeding

    Side Effects

    Nose bleeds after the Gemzar chemo treatment due to low platelet counts. Had platelet infusion one time. Not sure if it's the Cisp...

    Read More

    0 Comments
    • BobbiW
    • Experience with Bile Duct (Cholangiocar...
    almost 7 years ago
    BobbiW's Avatar

    Fatigue (tiredness)

    Side Effects

    Extremely tired and weak - particularly in the legs as they are swollen and have been since treatment started in early-Sept., althou...

    Read More

    0 Comments
    • BobbiW
    • Experience with Bile Duct (Cholangiocar...
    almost 7 years ago
    BobbiW's Avatar

    Eating problems (anorexia)

    Side Effects

    Appetite stinks! I try to consume approx. 1,000 calories or more per day. Not very successful getting that many calories in. My d...

    Read More

    0 Comments
    • BobbiW
    • Experience with Bile Duct (Cholangiocar...
    almost 7 years ago
    BobbiW's Avatar

    Fluid in the abdomen (ascites)

    Side Effects

    Endured paracentesis procedure twice - last time (1 week ago) was brutal with stomach cramps afterwards.

    Read More

    0 Comments
    • BobbiW
    • Experience with Bile Duct (Cholangiocar...
    almost 7 years ago
    BobbiW's Avatar

    Pain medicine

    Drug or Chemo Therapy

    Hydrocodone/APAP 5-325, now upped to 10-325 every 4 hours as needed. I'm now taking 1 tablet every 7-9 hours!!

    Read More

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • BobbiW
    • Experience with Bile Duct (Cholangiocar...
    almost 7 years ago
    BobbiW's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Initially Cisplatin and Gemzar used for 3 cycles of chemo treatment (Day 1 in cycle - Cisplatin & Gemzar, Day 8 in cycle - Gemzar, t...

    Read More

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  1. 1
  2. 2
  3. 5
  4. 6
  5. 7
  6. 8
  7. 10
  8. 12
  9. 13
  10. 14
  11. 15
  12. 31
  13. 32