1. almost 3 years ago
    Brandy122015's Avatar

    sorafenib

    Clinical Trial

    I am on Sorafenib to hopefully keep me in remission. When I was diagnosed with leukemia my doctor's were able to see I had a very ag...

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  2. almost 3 years ago
    Brandy122015's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Chemo was very rough.

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
    • GailB
    • Experience with Slow Growing, Chronic Ly...
    almost 3 years ago
    GailB's Avatar

    Car Engineered NK 2016-0641 MD Anderson

    Clinical Trial

    I go next week to do this. They will be taking Natural Killer Cells from and Umbilical Cord and Genetically Reengineer them to Kill...

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    1 Comment
    • GailB
    • Experience with Slow Growing, Chronic Ly...
    almost 3 years ago
    GailB's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Well my CLL is just not cooperative at all. Did not get a long remission after doing the Treanda & Retuxin. Held out as long as p...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • SK1974
    • Experience with Acute Lymphocytic Leuke...
    almost 3 years ago
    SK1974's Avatar

    Surgery

    Procedure or Surgery

    I HAD A HARD TIME TELL MY LOVE ONE ABOUT IT. BUT THAN LOVE AND THAT ALL WE NEED TO OVER COME IT

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
    • webmizer
    • Experience with AML Related to Previo...
    almost 3 years ago
    webmizer's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Chemo Brain

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    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • cjs7159
    • Experience with Slow Growing, Chronic ...
    almost 3 years ago
    cjs7159's Avatar

    Anniversary

    Celebration

    20 years since diagnosis on July 20, 2017

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    0 Comments
    • LeeWalker
    • Experience with Chronic Lymphocytic ...
    almost 3 years ago
    LeeWalker's Avatar

    I have been in remission for 6 months and my Dr. thinks it is a good time to take the port out, or I could wait three more months.

    Decision Point

    I hear that leaving the port in that sometimes infections can occur and blood clots. My Chemo treatments went very well. I was Stage...

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    1 Comment
    • Crackers
    • Experience with Chronic Lymphocytic L...
    almost 3 years ago
    Crackers' Avatar

    Problem with doctor

    Oh No

    Blood tests have changed for the worse, but Oncology Nurse said no reason for panic

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    0 Comments
    • Importtek
    • Experience with Chronic Myeloid Leuk...
    almost 3 years ago
    Importtek's Avatar

    Pain

    Side Effects

    Aches and pains all over

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    0 Comments
    • mofields
    • Experience with Chronic Lymphocytic L...
    about 3 years ago
    mofields' Avatar

    oral chemo pill has bad side effects

    Oh No

    Now have to try infusion. Yuch!

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    0 Comments
    • verymutch
    • Experience with AML Related to Previ...
    about 3 years ago
    verymutch's Avatar

    Surgery

    Procedure or Surgery

    I had a lumpectomy 1st but they could not get all the cancer out so had to then have a mastectomy on my right breast. Two surgeries ...

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    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
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