1. over 1 year ago
    annetteOR's Avatar

    Remission

    Celebration

    100 days post transplant a bone marrow biopsy was performed and it was determined I was in complete remission.

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    0 Comments
  2. over 1 year ago
    annetteOR's Avatar

    autologous stem cell transplant

    Procedure or Surgery

    The recovery was long and hard for me.

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    Went as Expected: Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  3. over 1 year ago
    annetteOR's Avatar

    Fatigue (tiredness)

    Side Effects

    After 12 weeks of chemo, I went out on disability after being unable to get to work enough hours in the week to constitute full time...

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    0 Comments
  4. over 1 year ago
    annetteOR's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    CyBorD (Cytoxan/Velcade/Dexamethasone) administered March 2014 through June 2014. Switched to Revlimid/Velcade/Dexamethasone July 20...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  5. over 1 year ago
    annetteOR's Avatar

    Bone strengthening drugs

    Drug or Chemo Therapy

    Had Zometa monthly for one year. The first infusion caused flu-like symptoms for the two or three days following treatment. Subseque...

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
  6. over 1 year ago
    annetteOR's Avatar

    Anemia medicine

    Drug or Chemo Therapy

    Had three transfusions in the early months of the illness.

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  7. over 1 year ago
    annetteOR's Avatar

    Just Diagnosed

    Oh No

    Diagnosed with Multiple Myeloma February 2014 after two months of severe back pain. I am a second generation MM patient. Thought MM ...

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    0 Comments
    • LeAnnH
    • Experience with Multiple Myeloma
    over 1 year ago
    LeAnnH's Avatar

    Remission

    Celebration

    Complete remission - February 2016

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    0 Comments
    • LeAnnH
    • Experience with Multiple Myeloma
    over 1 year ago
    LeAnnH's Avatar

    Revlimid, Velcade and Dexamethasone

    Clinical Trial

    I started my treatment journey with Velcade injections twice a week along with Revlimid caplets daily for 9 cycles. This put me in ...

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    2 Comments
    • Suez
    • Experience with Multiple Myeloma
    over 1 year ago
    Suez's Avatar

    Valacyclovir Hcl

    Drug or Chemo Therapy

    I have decided that this is the drug that makes me 'dizzy' for want of a better description. But, all around me had flu and got sic...

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    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • Suez
    • Experience with Multiple Myeloma
    over 1 year ago
    Suez's Avatar

    Dexamethasone

    Drug or Chemo Therapy

    Dex is a friend. I take a weekly dose timed to the velcade injection and have 2+ really good days from it. I get things done and f...

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    Easy to Do: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Suez
    • Experience with Multiple Myeloma
    over 1 year ago
    Suez's Avatar

    Bortezomib injection (Velcade)

    Drug or Chemo Therapy

    Injection site reactions are interesting to watch. Never the same in shape but always react by day 3 with an upraised sunburned lik...

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    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
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