• Cookie48
    • Experience with Mantle Cell Lymphoma
    about 2 years ago
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    Acupuncture

    Other Care

    because fluid retention is high due to my problems with steroids and hydronephrosis plus lymphdema of arms and leg-doing acupuncture...

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    • 1957
    • Experience with Non-Hodgkin Lymphoma (NHL)
    about 2 years ago
    1957's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Doing pretty well going into maintenance now

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • 1957
    • Experience with Non-Hodgkin Lymphoma (NHL)
    about 2 years ago
    1957's Avatar

    Surgery

    Procedure or Surgery

    So much swelling in neck ! Swelling down but still with discomfort

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    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  1. about 2 years ago
    chrismarler4's Avatar

    Quarterly blood tests.

    Other Care

    Current stage zero. Only being monitored by frequent blood tests.

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    0 Comments
    • Momma4t
    • Experience with Non-Hodgkin Lymphoma (...
    about 2 years ago
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    Low white blood cell counts (neutropenia)

    Side Effects

    Allergic reaction, fatigue, low blood counts,

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    0 Comments
    • Momma4t
    • Experience with Non-Hodgkin Lymphoma (...
    about 2 years ago
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    External radiation

    Radiation

    Just caused fatigue after treatment.

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    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • Momma4t
    • Experience with Non-Hodgkin Lymphoma (...
    about 2 years ago
    Momma4t's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Side effects caused severe hives and had to stop after 4 instead of 6 but am not showing any signs as of now.

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    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
    • MarciaLynn
    • Experience with Diffuse Large B-Cel...
    about 2 years ago
    MarciaLynn's Avatar

    Great PET scan results!

    Celebration

    PET Scan in Feb. 2018 after completion of chemo showed previous lymphoma tumors were gone.

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    0 Comments
    • po18guy
    • Experience with Angioimmunoblastic T-C...
    about 2 years ago
    po18guy's Avatar

    Cancer is back/Recurred

    Oh No

    Bone marrow biopsy reveals that MDS has recurred and is at the MRD (Minimum Residual Disease) level of 2.3% blast cells.

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    1 Comment
    • po18guy
    • Experience with Angioimmunoblastic T-C...
    about 2 years ago
    po18guy's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Consolidation chemotherapy to kill any remaining lymphoma cells.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • po18guy
    • Experience with Angioimmunoblastic T-C...
    about 2 years ago
    po18guy's Avatar

    Moderate intensity haploidentical allogeneic stem cell transplant.

    Procedure or Surgery

    30% mortality within the first three years. Acute, then chronic graft-versus-host-disease.

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    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
    • po18guy
    • Experience with Angioimmunoblastic T-C...
    about 2 years ago
    po18guy's Avatar

    External radiation

    Radiation

    Total body irradiation (TBI) to kill my failed marrow.

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    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
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