• MarciaLynn
    • Experience with Diffuse Large B-Cel...
    over 1 year ago
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    Great PET scan results!

    Celebration

    PET Scan in Feb. 2018 after completion of chemo showed previous lymphoma tumors were gone.

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    • po18guy
    • Experience with Angioimmunoblastic T-C...
    over 1 year ago
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    Cancer is back/Recurred

    Oh No

    Bone marrow biopsy reveals that MDS has recurred and is at the MRD (Minimum Residual Disease) level of 2.3% blast cells.

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    1 Comment
    • po18guy
    • Experience with Angioimmunoblastic T-C...
    over 1 year ago
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    Chemotherapy

    Drug or Chemo Therapy

    Consolidation chemotherapy to kill any remaining lymphoma cells.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • po18guy
    • Experience with Angioimmunoblastic T-C...
    over 1 year ago
    po18guy's Avatar

    Moderate intensity haploidentical allogeneic stem cell transplant.

    Procedure or Surgery

    30% mortality within the first three years. Acute, then chronic graft-versus-host-disease.

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    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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    • po18guy
    • Experience with Angioimmunoblastic T-C...
    over 1 year ago
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    External radiation

    Radiation

    Total body irradiation (TBI) to kill my failed marrow.

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    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • po18guy
    • Experience with Angioimmunoblastic T-C...
    over 1 year ago
    po18guy's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Transplant conditioning chemo received at 10X normal dosing.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • po18guy
    • Experience with Angioimmunoblastic T-C...
    over 1 year ago
    po18guy's Avatar

    Stem cell transplant. We had exhausted all lymphoma drugs and after two relapses and a muation/transformation, the liklihood of relapse was great.

    Decision Point

    In 2009, there was no match found for a transplant in the world donor registry. In 2015, there was still no match. No siblings. My t...

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    • po18guy
    • Experience with Angioimmunoblastic T-C...
    over 1 year ago
    po18guy's Avatar

    A trial was created solely for my case. "TEC" Treanda (Bendamustine), Etoposide and Carboplatin.

    Clinical Trial

    This combination was stunningly effective. It eliminated two aggressive T-Cell Lymphomas at stage IV-B (24 tumors plus spleen and il...

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    • po18guy
    • Experience with Angioimmunoblastic T-C...
    over 1 year ago
    po18guy's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Pralatrexate, a more potent cousin of Methotrexate. Grade 3 oral mucositis. PET/CT showed disease progression.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • po18guy
    • Experience with Angioimmunoblastic T-C...
    over 1 year ago
    po18guy's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Back on Belinostat. PET/CT showed disease progression.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • po18guy
    • Experience with Angioimmunoblastic T-C...
    over 1 year ago
    po18guy's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Had a single infusion of Belinostat (Beleodaq), but stopped it to enter a clinical trial.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • po18guy
    • Experience with Angioimmunoblastic T-C...
    over 1 year ago
    po18guy's Avatar

    Cancer is back/Recurred

    Oh No

    Relapse also showed that it had mutated into two types of T-Cell Lymphoma: PTCL-NOS as well as AITL. WE increased the dosage of romi...

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    0 Comments
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