• po18guy
    • Experience with Angioimmunoblastic T-C...
    about 1 year ago
    po18guy's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Back on Belinostat. PET/CT showed disease progression.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • po18guy
    • Experience with Angioimmunoblastic T-C...
    about 1 year ago
    po18guy's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Had a single infusion of Belinostat (Beleodaq), but stopped it to enter a clinical trial.

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • po18guy
    • Experience with Angioimmunoblastic T-C...
    about 1 year ago
    po18guy's Avatar

    Cancer is back/Recurred

    Oh No

    Relapse also showed that it had mutated into two types of T-Cell Lymphoma: PTCL-NOS as well as AITL. WE increased the dosage of romi...

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    0 Comments
    • kicks
    • Experience with Follicular Lymphoma
    about 1 year ago
    kicks' Avatar

    Just Diagnosed

    Oh No

    I was shocked about my diagnoses. The docs moved very quick with tests, getting the port in and scheduling chemo.

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    0 Comments
    • kicks
    • Experience with Follicular Lymphoma
    about 1 year ago
    kicks' Avatar

    Implant chemotherapy port

    Procedure or Surgery

    I find it hard to believe no pain meds are given for recovery--even just a day's worth. Tylenol just took the edge off the pain. I...

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    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
    • kicks
    • Experience with Follicular Lymphoma
    about 1 year ago
    kicks' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Chemo begins on Aug 6th!

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • Kal
    • Experience with Mantle Cell Lymphoma
    about 1 year ago
    Kal's Avatar

    When to start treatment.

    Decision Point

    Diagnosed August 2017. Likely I had MCL for a couple of years prior. First treatment February 15, 2019. B/R for 4-6 months. If I...

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    0 Comments
    • Debech
    • Experience with Mantle Cell Lymphoma
    about 1 year ago
    Debech's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    My husband just completed his 1st round of chemo-Bendeka and immunotherapy-Rituxan. He was really tired after yesterday, took 6 hrs....

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    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
    • SueRose
    • Experience with Nodal Marginal Zone B-...
    about 1 year ago
    SueRose's Avatar

    The gym

    Other Care

    After a year of working I am finally able to get back to the gym. It has taken this long for my muscle pain to go down and be able t...

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    0 Comments
    • SueRose
    • Experience with Nodal Marginal Zone B-...
    about 1 year ago
    SueRose's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    Port removed in June 2018!!!! Woo hoo! Much faster recovery than having it put in. No pain meds other than Advil needed, used some i...

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    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
    • Kal
    • Experience with Mantle Cell Lymphoma
    about 1 year ago
    Kal's Avatar

    Just Diagnosed

    Oh No

    i was diagnosed in August 2017 via a routine colonoscopy. Only symptoms have been occasional blood in the stool and having more freq...

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    0 Comments
  1. over 1 year ago
    Grigb2105's Avatar

    External radiation

    Radiation

    Tiredness at 9th treatment need 18

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    Painless Experience: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
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